Pain Free Bria

“Momma, it feels like I am always on fire while someone is also pouring acid over me and stabbing me with a searing hot knife.” Bria
50818756_1598821506917077_r.jpeg#PainFreeBria gofundme.   
ALTERNATIVE donation option-      
Checks may be written and sent to
THE BRIA BLOCK DONATION FUND   
WECU
PO Box # 9750
BELLINGHAM, WA 98227

                                                                          ~BRIA'S STORY~
Hi,  We are John & KayAnn Eide. We raised our three beautiful kids in Lynden, WA. 
Our youngest daughter Bria Eide Block has a debilitating illness known as CRPS. Bria's pain is constant, 24/7, making it one of the most severe diseases to date.
How can John and I find words to capture what seems like a lifetime of chronic pain inside our home’s walls?  Bria’s childhood is a bittersweet blur of finding our beautiful daughter curled up on the couch in unending pain instead of outside chasing butterflies with her brother and sister. 

FROM PAPA AND MOMMA
Our days consisted of frequent trips to the hospital, endless pediatrician visits, and even moving down to Seattle Children’s Hospital for extended treatments. Blood tests after blood tests, MRI scans, and specialist referrals led us to a Complex Regional Pain Syndrome (CRPS) diagnosis when Bria was 11. Many birthday parties, church and school functions, holiday celebrations, and playdates were not a part of Bria’s life. 
Bria has now had this debilitating illness for 18 years. The challenges that Bria has faced due to CRPS are innumerable. From a very young age, her life has been controlled by pain. Dreams, goals, and simply “life” have been placed on the back burner as she has tried to survive. She has battled depression since her childhood and suffers from insomnia every night. Life can get very very dark for our daughter. Her emotional outlets in the suffering have been her painting, blogging, enjoying nature, and her strong faith.

BRIA'S PAIN
Bria’s CRPS started in her leg, but now it resides in her upper abdomen, both sides of her head, upper neck, and forehead. All of the locations of Bria’s CRPS are debilitating, but the pain in her abdomen is especially excruciating. Since all movement originates from her core, Bria can’t move any part of her body without it amplifying her pain.
Small movements like painting and even brushing her teeth have to be done slowly and methodically as small tasks are very painful. On a scale of 1-10, her pain levels never dip below a 6 and her daily pain stays at a 7-9 level. When Bria’s pain reaches 8+, she is completely incapacitated. She is not able to move or talk and is completely frozen in pain. Bria has been prescribed a wheelchair for longer outings, and now, at 29, requires the day-to-day use of a cane. Her whole world is designed around keeping her pain from flaring.

DIAGNOSES
Bria was diagnosed with CRPS when she was 11 years old in 2002. CRPS occurs after injury and is caused by a dysfunction of the central and/or peripheral nervous system, severely amplifying pain in the affected area(s). CRPS, nicknamed the “suicide disease,” has a rating of 46 out of 50 on the McGill pain scale (rating higher than amputation and cancer). CRPS usually starts in one of the four limbs but can spread to any part of the body, including internal organs.  There is no known cure for CRPS. 
Bria was diagnosed with debilitating Complex-PTSD in 2012 in addition to CRPS. The overall stress to her adrenals caused by CPTSD brings many complications. Additionally, Bria was recently diagnosed with Fibromyalgia, which also causes pain and severe fatigue in all her limbs. The combination of the three diagnoses intensifies all her symptoms.

FROM BRIA
“I mainly dream of normalcy,” Bria says. “Being able to breathe, laugh, or hold a conversation without having to combat pain. Being able to sleep for more than a few hours and perform small tasks without assistance. Being able to play fetch with my service dog Rowan, bake in the kitchen, and go on nature hikes with my wonderful husband David.”

HOPE
Bria has not found any medication that brings any level of relief to the excruciating pain. We have much hope as we have learned of the Spero Clinic in Fayetteville, Arkansas. Targeted therapy is used to reset the central nervous system, which reduces pain and increases mobility in many CRPS patients.

SPERO CLINIC
The Spero Clinic is a medical treatment center in Arkansas that uses a unique holistic approach to treat CRPS and Fibromyalgia. The clinic will also have one doctor that addresses her Complex-PTSD. Over 12-14 weeks, a specialized team dedicated to Bria’s unique case will guide her through multiple therapies designed to reset the central nervous system. This will reduce her pain while improving her physical mobility and stamina. Many CRPS patients are reporting remarkable improvement through these treatments. It is the only clinic offering these specific treatment methods worldwide. 

NEEDS & EXPENSES
 For this need we’re asking God and sharing with you... first and foremost we ask for your prayers and also ask you to consider sharing financially in this need.
The Spero Clinic program is NOT covered by insurance and there are no payment plan options. David, being Bria’s primary caretaker and sole financial provider for the family, will need to take off work for three months. They want to move to Arkansas in January 2021, as Bria will have 6-8 appointments a day.
The money we are fundraising will go to the Spero Treatment Plan, airline tickets, and the couple's lodging.
Our family is so hopeful for Bria and we invite you to watch the attached video 'Finding Hope' to see why we are feeling confident about this treatment from Spero Clinic.

Finding Hope https://www.youtube.com/watch?v=ZIk9dbn0auM&feature=youtu.be
Feel free to visit Spero Clinic Website  https://thesperoclinic.com/services/
Feel free to watch CRPS "The Most Painful Disease Known to Humans"
https://youtu.be/zZhWVEn4uHU

#PainFreeBria gofundme.   
ALTERNATIVE donation options go to      https://painfreebria.ucraft.site/
Checks may be written and sent to
THE BRIA BLOCK DONATION FUND   
WECU
PO Box # 9750
BELLINGHAM,WA 98227
50818756_159907559782340_r.jpegJohn & I would like to introduce you to David & Bria Block from Lynden, WA, and Bria's service dog "Rowan".        September 1, 2020, Cain Lake, Alger WA

50818756_1599014378531737_r.jpegSnuggling through the pain.

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'As a father besides the death of a child, I am not sure if there is a living nightmare worse than watching your child endure severe pain 24 hours a day.'  Bria's father, John Eide

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Drawing and painting, let Bria 'speak'.
50818756_1599076061967753_r.jpegBria earned a Visual Communications degree from Whatcom Community College

50818756_159907518440582_r.jpegVisit: Trauma & PTSD  bria_danae (Instagram blog)
The level of honesty in Bria's blog brings reality to her loved ones and herself.

50818756_1599008051427288_r.jpegBria’s legs randomly give out, causing her to fall.
50818756_159900818716708_r.jpegBria's life has continually become more physically limited as her CRPS has gotten more severe.

50818756_1599020187822821_r.jpegBria and her siblings Zac  Eide and Kelsea Eide Allen~

50818756_1599015113703535_r.jpegOur survivor, 'Pain is real but so is hope.'

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"Beautiful blues...Rowan your loyalty makes me weep some days." Bria's momma
KayAnn Eide

50818756_1598810553887626_r.jpeg"Bria's husband David seems to have 'caregiving' in his DNA." Bria's momma
KayAnn Eide


Your daily prayers mean the world to our family, John & Kay Eide
 



MORE FROM BRIA'S BLOG~


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Organizer

Kay Eide 
Organizer
South Cle Elum, WA
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