HSCT Stem Cell Treatment for my MS

My Life changed 3 years ago when I was diagnosed with Multiple Sclerosis it was an even greater shock when the neurologist at the time said I had, had MS for the previous 15 years!

I have been married to Rod for 23years and we have two grown up children Cameron and Heather, who’s lives have also changed over the last three years assisting me.

I have been employed as a Postwoman at Preston Mail centre for just over 20 years, and 5years ago I got elected as the CWU Area Health and Safety representative for the North Lancs and Cumbria Branch.

I love my family life and the jobs I do, but everything I do has become more difficult over the last few years.

For  those of you that are not aware Multiple sclerosis (MS) is a condition that affects the brain and the spinal cord, the coating that protects your nerves called (myelin) is damaged, and this causes a range of symptoms.

At the time of my diagnoses I was very naive, knowing very little about the condition but I was adamant that with positive thinking and determination I would be able to control the MS without too much effect on my life.

How wrong could I be!, over the last 12 month my health has deteriorated, my agility and mobility have deteriorated and no matter how hard I try to fight it, it is not getting any easier, on my bad days I have to ask for assistance with the most simple of tasks. Meetings with my consultant have confirmed that as time progresses things could only get worse.

However a glimmer of hope appeared after watching a programme on TV about Stem Cell treatment trails a possible cure for certain types of MS which after watching and researching I went to see my neurologist to ask if I could get on the programme, only to be told I did not fit the criteria, on my next appointment I asked a different neurologist and he agreed with the initial diagnoses that the trials wouldn’t suit me on this occasion.   

HSCT – autologous hempatopoietic stem cell transplant is a procedure where your stem cells are harvested, then chemotherapy is given to suppress the faulty immune system, the healthy stem cells are then reintroduced to hopefully build an immune system that does not have MS. There is apparently an 80% chance of it stopping the condition in its tracks with improvement in mobility returning.

So a couple of months ago after lots more research I made contact with a hospital in Russia, I sent them my medical files and was absolutely over the moon when they got back to me and informed me that I do fit their criteria and that they would be willing to admit me for treatment. It is still not 100% guaranteed that the treatment will happen there is an initial 3 day examination period at the hospital and the treatment would not go ahead if they find something else wrong with me that would affect my recovery. If this happened I would donate any funds raised from this page to MS Charities to assist fellow suffers of M S.

The date I have been given for admission is the of 24th September 2018 so the clock is ticking.

I feel that this is my last chance to escape the confines of this condition and hopefully regain some control of my limbs, I have responded to the Hospital in Russia and accepted the position, however the treatment comes at a cost and as yet I don’t have the finances to pay for it.

A large number of family members and friends both at work and at home have suggested that I set up crowd funding.

I have until early September to raise enough money, the treatment alone will cost £40,000.  I would not ask for anyone to contribute to travel and accommodation as this will be raised separately by my close family.

I have set up this account on go fund me in the hope that some of you will assist me in my endeavours to raise these funds, 

Thankyou for your kindness

Elaine  xx

Donations

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  • Anonymous 
    • £50 
    • 25 mos
  • Dena Popov 
    • £125 
    • 25 mos
  • Caroline Tonge 
    • £30 
    • 26 mos
  • Gary Peacock 
    • £10 
    • 26 mos
  • James Tyson 
    • £20 
    • 26 mos
See all

Organizer and beneficiary

Rod Dalgleish 
Organizer
Longton, North West England, United Kingdom
Elaine Dalgleish 
Beneficiary
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