donated for the equiptment we got Theodore previously - a huge Thank you ..
For or those whom don't know us I would like to say
I'd like to introduce myself: I'm Sharon , I have the priveledge of being a Mother to one of the most adorable, determined, sweetest little boys on the planet with the biggest smile and best cuddle . He is an absolute gift. On the down side Theodore also has an extremely rare genetic condition he is very fragile and has many health issues - we have tackled most ... He has been through so much in his short 4.5 years with a 3 hour stomach surgery and peg fitted . Plus 3 eye operations ... He has low muscle tone called hypotonia which makes moving anything in his body really difficult not only does he suffer with not being able to walk at all or stand on his own , he also cannot talk and has to be fed by tube with milk he is eating orally so we are getting somewhere but he has aspiration lung disease so we have to be careful whilst feeding him .. , ...
Also Theodore knows what he wants to do, but he can't make his body do it. We need to repeat things hundreds, if not thousands of times to be able to try to achieve what we are trying to do with relative ease. For Theo what we've found is doing very intensive therapy helps him overcome this. For example, He has achieved in the past six months how to
push his bottom up to sit on me due to intensive repetitive physio ......I stand him Up daily but he is so very weak he falls .
He is getting a wheel chair in the next few weeks and needs an adaptive van which will be good for him , We really would love to take Theodore to get intense therapy for three weeks in hope it will help him
gain some strength And life skills
The NAPA centre in Sydney (originally in Los Angeles) specialise in this type of therapy, and we'd love to be able to take him there.
We are hoping to prepare a program for Theodore to spend 6 hours a day with therapists with the goals of: using different therapy being held up by a suit and bungee ties - , with supports limiting his falls , learning to support himself - being able to use his hands appropriately for play, eating independently (he would dearly love to feed himself eating a wider variety of textures, and most of all this would all help him engage and play with children of a similar age: something he is desperate to do. Most children that attend the NAPA centre achieve 6-12 months of development per intensive 'session'.
Unfortunately these programs are really expensive. We are hoping to raise $15 000 to send us to Sydney for a three week intensive program sometime this year. We would be so very thankful for your support to help us help Theodore , and get him up and walking and hopefully be able to communicate with us. I honestly believe his life will be set on a different path if we can help him
achieve these goals.
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