Hope for Vincent

43562950_1575236212547632_r.jpegOur youngest son Vincent is fifteen years old and a sophomore in high school. His teachers refer to him as an extraordinary student athlete, maintaining honor roll while playing football and baseball. 

In early August, Vincent developed a throat infection and was treated with clindamycin but unfortunately had an allergic reaction and had to stop taking the antibiotic. He was treated with a steroid shot and oral steroids.

In early September, he fell and broke his arm. We took him to the doctor to confirm he didn’t have a concussion or any other type of head injury. Shortly after the doctor visit, Vincent started to complain that he was seeing double.  

We took him to the ER to get him checked out and he was admitted to Maria Fareri Children’s Hospital.  He spent ten days in the hospital going through numerous tests. Finally, they diagnosed him with Miller Fisher Guillain- Barre.

Miller Fisher Guillain-Barre syndrome is a rare autoimmune disease that attacks the nervous system.  Vincent cannot control his balance and has persistent double vision.  After having 5 antibody infusions, 4 MRIs, a spinal tap, nerve testing and an EEG of the brain, there has been no improvement in his motor skills, balance or vision.

Vincent may also have another rare autoimmune disease called myasthenia graves (MG). He was put on  a trial medicine to  treat the MG, but it actually amplified his symptoms. MG is a neuromuscular disease that leads to skeletal muscle weakness.  

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 Vincent keeps a positive attitude throughout his medical treatments, physical therapy sessions, and home school instruction.  He has been out of school for 3 months and there has been no improvement in his condition.  We decided to get a second opinion at Colombia Presbyterian in New York and the pediatric neurologist will be presenting this rare case to a team of doctors to determine what the next step will be.  

Although we continue to have faith and hope for a cure, the abundance of medical bills and co-pays are accumulating. I have not been able to return to work, my husband and I have used up our family leave time, and we have exhausted our savings. 

I’m reaching out to family, friends, and potential contributors to help us during this difficult time. My family and I would be forever grateful for any help with reducing the financial stresses so we can focus on getting our “Vinny boy”  back to being the healthy, athletic, and vibrant kid that everyone knows him to be.
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Donations

  • Mike DiGiaimo  
    • $50 
    • 1 d
  • Makenzie Failla 
    • $20 
    • 1 d
  • Angela Borrello 
    • $40 
    • 29 d
  • Hugh F McManus 
    • $100 
    • 1 mo
  • Nicole Celio 
    • $50 
    • 1 mo
See all

Organizer

Mary Powers Schaub 
Organizer
Yonkers, NY
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