Turn The Light On


Complex regional pain syndrome (CRPS)is called the suicide disease. Think about that for a minute. If you Google CRPS, it literally says “The Suicide Disease”.

This is my daughter Sydney’s  story. She knows only too well why CRPS is called the suicide disease.  I’ve given everything I have to help her in her struggle. You are Sydney’s last hope for treatment. This really is that critical. A life is truly at stake. 
Complex regional pain syndrome (CRPS) is a disorder in which pain has no schedule. It is unexpected and incredibly painful. It does not care where she is or what she is doing. And Sydney knows this. She knows that at any moment she could be engulfed with burning pain. I want to reach out to her, to hold her and tell her it’s going to be ok. But I can’t hug her. I can’t touch her. I can’t hold my child because it hurts her. Some days I feel like my heart will burst.  It is horrible and my child is living with this soul sucking disease.  

Let me give you some background. 
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10 years ago, my beautiful child was bitten by a tick. Soon after she developed Lyme Disease and a coinfection called Babesiosis. a potentially severe, and sometimes fatal tick-borne disease caused by an infection with a red blood cell parasite. As the years went on, it seems like she never fully recovered. It was then she was diagnosed with CRPS.

Since then, Sydney has lost all purpose. She can no longer take care of herself. She has developed PTSD and experiences severe anxiety.  She lives in a brain fog with extreme fatigue and neurological impairments. She has lost most of her ability to maintain friendships resulting in isolation and intense loneliness. She feels worthless because she can’t contribute to anything. She has fought and fought and fought for her health and suffered immeasurable disappointments. She is worn out and depleted. Sydney wants to live.  She wants to have a life, a real life. Just like you have. I want that for my baby girl. More than anything I want a better life for her.

Yet Doctor after Doctor, test after test. Nothing is working. Her case is rare. It is also untreatable. Or so we thought. Until one of Sydney’s Doctors told us about the Spero Clinic.

The Spero Clinic in Fayetteville, AR.  Their treatment lasts an average of 12-14 weeks. Based on our conversation with Anna Jones at the Spero Clinic and Sydney's doctor, we are needing to raise $70,000 This will be used for pre and post treatment, in patient treatment, room and board, travel and home care.  Spero is a small clinic and cannot accept payment plans.  We need your help, desperately.  Tax deductible donations can be made to the Burning Limb Foundation in Sydney’s name.  Below is contact information for both the Spero Clinic and the Burning Limb. Please think about this, pray about this and donate whatever you can.  I don’t know what else to do or have anyone else to turn to.  We need donations and help fundraising.   If we all work together, this can happen. We can save her life and give her a chance to live a more normal life.  If you have questions about the treatment, you can contact either of these two people who are most familiar with their program and the long term results of their treatment.

 

 

The Spero Clinic                            The Burning Limb

Anna Jones                                       Philip Robert

Patient Advocate                          Previous Patient and Founder

479.304.8202                                214.298.3354

[email redacted]       [email redacted] 

www.thesperoclinic.com          www.burninglimb.com 

 

 For Tax Deductible Donations to the Burning Limb:  https://burninglimb.networkforgood.com/projects/82275-our-alchemy-turns-your-donation-into-hope-for-many   Please mention Sydney Moore with your donation.  

To make a donation to the Go Fund Me page, Turn The Light On, please follow the prompts.  This is the best option for coverage of pre and post treatment. We need your help to go further.
 

 THE SPERO CLINIC

 OUR PROGRAM IS LARGELY DIFFERENT FROM ANYTHING THAT YOU HAVE EXPERIENCED BEFORE . WE ARE NOT YOUR TYPICAL MEDICAL CLINIC. WHEN YOU ARRIVE, YOU WILL FEEL A SENSE OF COMPANIONSHIP AND UNDERSTANDING FROM STAFF AND CARE GIVERS ALIKE . OUR MISSION IS TO HELP THOSE WHO HAVE LOST HOPE TO RECLAIM THEIR LIVES. WE ARE FIERCELY COMMITTED TO OUR FIGHT TO GIVE PATIENTS WHAT THEY DESERVE - TO BE HAPPY AGAIN , TO LIVE WITH PASSION AGAIN, TO BE ALIVE AGAIN WITH JOY.

WE USE MU LTIPLE TOOLS AND TECHNIQUES DESIGNED TO ENHANCE EACH OTHER SYNERGISTICALLY IN ORDER TO RESTORE BALANCE TO THE CENTRAL NERVOUS  SYSTEM, ENABLING THE BODY TO HEAL ITSELF. THE INDIVIDUAL THERAPIES ON THEIR OWN DO NOT CONSTITUTE SUCCESS -IT IS THE COMBINATION OF ALL OF OUR MODALITIES WORKING TOGETHER THAT ALLOWS US TO ACHIEVE LASTING RESULTS.   
                                         

PATIENTS TRAVEL FROM AROUND THE GLOBE TO OUR CLINIC FOR ONE REASON ALONE: OUR SUCCESS RATES WITH NEUROLOGIC DYSFUNCTION

SOME OF THE TOOLS AND TECHNIQUES WE USE:

•         Katman Vagus Nerve Therapy

•         Genetic Profiling

•         Scar Tissue Therapy

•         Neuromuscular Re-Education with Patented

            Technology

•         MEND Frequency Specific Microcurrent

•         Magnetic Resonance Technology

•         Viral and Bacterial Analysis and Treatment

•         Neuromodulation Treatment

•         Oxygen Therapy

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Donations

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  • Anonymous 
    • $100 
    • 9 d
  • Anonymous 
    • $2,000 
    • 11 d
  • Anonymous 
    • $100 
    • 11 d
  • Anonymous 
    • $100 
    • 11 d
  • Melissa Centro 
    • $100 
    • 13 d
See all

Organizer

Susan Moore 
Organizer
San Clemente, CA
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