At two days old we found out that he neither soil nor urinate properly. The doctors in Indonesia where he was born gave us unclear information as to what was wrong with our baby. Subsequently they were unable to provide for us a viable solution. We travelled to Singapore, where he underwent an extensive diagnosis and so we found out what was wrong with him.
Dario has a very rare and complex anomaly of a Y duplication of his urethra. However even with this information, the doctors in Singapore said that they do not have a treatment in the country and unable to provide a solution to Dario's condition as yet.
In February 2014, after researching on the internet, we found a specialist paediatric surgeon in Australia who seem to has treated cases like Dario. For the first time in the whole year we were able to see a light at the end of the tunnel.
We travel to Perth and after ultrasound, small surgery and MRI, our doctor in Australia was able to give us a real answer about Dario; the biggest ones are Y-Type Duplication Urethra Type 2, Hypoplastic orthotropic urethra to penile tip, Anterior Anus Rethrourethal Uretral Fistulae, solitary left kidney and an absence of tail bone.
The best thing we heard from our surgeon was that our doctor straight away knew what to do and was able to give us several solutions, so for the first time since his birth we know what need to be done to Dario.
Today, Dario have to use colostomy bag on his left stomach to soil as well as a long tube on his right to help him urinate.
Our wonderful doctor in Perth told us that we need to undergo about six different of surgeries for Dario. We are Indonesian and we do not have government medicare and our already expensive insurance does not cover surgeries outside of Indonesia. However, since no doctors in Indonesia are able to perform any of the surgeries we opt for a someone who knows the problem and able to perform the necessary tasks.
And as most parents do, we would give for our boy the best treatment that opportunity provide, even if the path is beyond our limit and ability.
However the journey is long and the path is covered with obstacles. A journey that will take multiple years but a journey that we can finally begin, for now we know which direction we go and the path we need to take.
To continue, we need your support with a rather large financial burden, the many travels we need to take and the many surgeries that Dario will be facing for this year only.
We need your help and every little bit will be appreciated, and we thank you all for your support and consideration.
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