HOPE For A Cure: LND Gene Therapy Research Fund

Our community needs your help. We are raising money to benefit Love Never Sinks, and any donation will help make an impact.

The money will directly go to the Love Never Sinks foundation for research. The Orphan Disease Center at Penn Medicine will be continuing their ongoing studies on gene therapy for Lesch Nyhan Disease. This team is dedicated to finding a transformative therapy to help those who suffer from this severe neurological disease.

LND is an X-linked recessive genetic disorder that completely debilitates those afflicted with it. It includes impaired kidney function, self-injurious behaviors and severe motor impairments that include dystonia, spasticity and hypotonia. Currently there is no standard treatment for the neurological symptoms of LND and the prognosis is poor.

We are seeking improvement of quality of life for our children, and our community has been given an opportunity of a lifetime. Any amount will help continue our journey for hope and a treatment through gene therapy. 

Thanks in advance for your contribution to this cause that means so much to me and so many more.

To learn more about LND, please visit:

https://www.loveneversinks.org/

https://www.newyorker.com/magazine/2007/08/13/an-error-in-the-code

Michelle Lucas has dedicated her life to our community, sharing countless stories of  journey navigating the complexities of caring for a child with Lesch Nyhan Disease. 

Her advocation and commitment never wavered. Help us honor Keith and Daniel's legacy and continue this research for those who are suffering and for the children of the future.