First off let me say I really hate myself for doing this. I'm really embarrassed and I put it off for a long time because I thought I would get back on my feet much sooner.
In August 2015, I had radiation treatment for a benign, inoperable brain tumor. The treatment was needed because the tumor is pressing on nerves that control breathing, swallowing, and hearing, and now my tongue does this weird thing when I stick it out (it hooks to the left but that's not important). Unfortunately I did not gain super powers...
The radiation worked and the tumor is shrinking (YAY!) but it also caused a ton of problems with the rest of my body because it compromised my immune system. I'm having a severe ongoing fibromyalgia flare up, got mono again, and unrelated got about 8 kidney stones just because why the hell not?
You might be thinking, "It's been almost two years! Why isn't she better yet? She doesn't look sick... She still posts pictures of herself on Facebook so is she lying?" I am a comedian. I like to make people laugh, not cry. Who wants to see photos of their friends at their worst? With all of my medical problems I've done everything I can not to be a Debbie Downer. I don't WANT anyone to feel bad for me. I want everyone to smile and laugh with me. That is the only way I can get through this painful time in my life that never seems to get any better. Fibromyalgia is a complicated disorder and I'd be happy to answer any questions about it. Also know that every single person is different and responds to treatment differently. That photo is a selfie I took two weeks after my treatment. Even though my hair is styled and I have a smile on my face, on the inside I am in pain from moving my body and trying really hard not to throw up.
I've tried many different medications, alternative treatments, and strict diets to get some relief but nothing worked until this new medication I just started (which kind of works but not 100%). I also used to be permitted to work from home so I WAS doing okay. Then due to a policy change, no one in the office is allowed to work remotely anymore so when I'm not in the office, I'm not getting paid and I've exhausted all of my sick time (even had to ask for an advance a few times).
I wish I could say I'm almost back on my feet but the truth of it is, I'm not. Not even close. I am currently looking for a second opinion regarding pain management doctor. I haven't been able to work during the day. The only thing I can do now is comedy because I can rest during the day and work for a couple hours at night when I am feeling a little better.
I just need some help to pay my medical bills and make these buttholes stop calling me every day. I rarely have good days which I am very grateful for but until I get better, I don't know what else to do. My new insurance will not cover my pain meds and I'm at my wit's end. I just want to feel normal again. Anything you can do, donate or share, will be greatly appreciated. Thank you all!
- Paul Wilimczyk
- E S
- Hugh Murray
- Syed Masroor
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