<div>Hallo, ich bin Amanda!
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<div>Ich bin ein 2 Jahre altes Mädchen mit einer extrem seltenen Krankheit. Weltweit sind weniger als eine Handvoll Fälle bekannt. Eines meiner Gene ist so mutiert, dass ich schwer behindert bin (mehr zu meiner Geschichte <a href="https://www.kmsk.ch/resources/Seltene-Krankheiten_Case-Management_Amanda_Heterozygote-de-novum-Mutation1.pdf" target="_blank" rel="noreferrer noopener">hier</a> (S. 84-87), oder <a href="https://www.tvo-online.ch/aktuell/nur-zwei-faelle-weltweit-zweijaehrige-amanda-mit-aeusserst-seltenem-gen-defekt-158922892" target="_blank" rel="noreferrer noopener">hier - ein Bericht vom TVO</a>). Zum Glück habe ich eine liebevolle Familie - Mama, Papa und Schwester - die den Himmel auf Erden bewegen, um mir das Leben so schön wie möglich zu machen. Da ich fast nichts alleine machen kann, nehme ich jede Hilfe an, die ich bekommen kann. Ich habe viele Therapeuten und Pflegepersonal, die mir helfen, meinen Alltag zu meistern. Um zu all diesen Terminen und Spitalbesuchen zu gelangen, bin ich auf Mobilität angewiesen. Meine Eltern haben derzeit ein Auto, aber dessen Tage sind gezählt, und sie müssen sich ein neues Auto zulegen. Das neue Auto muss für meinen Rollstuhl umgebaut werden. Die Anschaffung des Autos ist für meine Eltern eine unmögliche Aufgabe, da sie nicht die Mittel für einen solchen Kauf haben.
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<div>Mit Ihrer Spende würden meine Eltern einen VW Caddy Maxi kaufen, der mit einer Rampe modifiziert werden würde. Der Umbau wird wahrscheinlich von der Versicherung übernommen, aber nicht das Auto selbst. Das Auto muss neu oder wenig gebraucht sein, damit sich der Aufwand des Umbaus für meinen Rollstuhl lohnt und der Umbau möglichst lange hält.
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<div>Mit Ihrem Beitrag würden Sie nicht nur dazu beitragen, dass ich mobil bleibe, sondern auch den Alltag meiner Eltern wesentlich erleichtern. Wir könnten nicht nur zu allen Terminen fahren, sondern hätten auch mehr Zeit für uns als Familie. Und in meiner Welt bedeutet Zeit mit der Familie alles.
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<div>Herzlichen Dank!
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<div>Für<strong> Twint Zahlungen bitte untenstehenden QR Code einscannen</strong> und den gewünschten Betrag überweisen.
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</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/82754315_1727436584430074_r.png" width="100%" />
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<div><strong>******</strong>
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<div>Hi, my name is Amanda!
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<div>I'm a 2 year old girl with an extremely rare medical condition. Less than a handful of cases are known worldwide. One of my genes has mutated in a way that leaves me severely disable (more on my story <a href="https://www.kmsk.ch/resources/Seltene-Krankheiten_Case-Management_Amanda_Heterozygote-de-novum-Mutation1.pdf" target="_blank" rel="noreferrer noopener">here</a> (p. 84-87, German only) and <a href="https://www.tvo-online.ch/aktuell/nur-zwei-faelle-weltweit-zweijaehrige-amanda-mit-aeusserst-seltenem-gen-defekt-158922892" target="_blank" rel="noreferrer noopener">here</a> (video, German only)). Luckily, I have a loving family - mom, dad, and sister - that move heaven on earth to make my life as wonderful as possible. I am not able to do almost anything on my own, so I take all the help I can get. I have lots of therapists and healthcare workers who help me navigate my daily life. To get to all of those appointments and hospital visits, I am dependent on mobility. My parents currently have a car, but its days are numbered and they need to get a new one. The new car needs to be modified for my wheelchair. The price of the car is an impossible task for my parents, as they do not have the means for such a purchase.
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<div>With your donation, my parents would buy a VW Caddy Maxi that would be modified with a ramp. The modification will likely be covered by health insurance, but not the car itself. The car needs to be new or slightly used, so the effort of modifying the car for my wheelchair is worthwhile, and the modifications can last as long as possible.
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<div>With your contribution, you'd not only be helping me stay mobile, but making my parents’ everyday life much easier. We'd not only be able to get to and from all the appointments, but also to have quality time as a family. And in my world, family time means everything to me.
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<div>Thank you!
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</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/82754315_1726307616763867_r." width="100%" />
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Patrizia Cronin

Anonymous

Sebastian Krause

Mobilität für Amanda

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