In the UK, most cases of cystic fibrosis are picked up at birth using the newborn screening heel prick test.
Symptoms usually start in early childhood and vary from child to child, but the condition gets slowly worse over time, with the lungs and digestive system becoming increasingly damaged.
Treatments are available to help reduce the problems caused by the condition and make it easier to live with, but sadly life expectancy is shortened.
The build-up of sticky mucus in the lungs can cause breathing problems and increases the risk of lung infections. Over time, the lungs may stop working properly.
Mucus also clogs the pancreas (the organ that helps with digestion), which stops enzymes reaching food in the gut and helping with digestion.
This means most people with cystic fibrosis don't absorb nutrients from food properly and need to eat more calories to avoid malnutrition.
People with the condition can also develop a number of related conditions, including diabetes, thin, weakened bones (osteoporosis), infertility in males, and liver problems.
My Family and friends are taking part in the Yorkshire 3 Peaks challenge on the 5th may 2018. It is in aid of my son Harry, a brave 1 year old child who has suffered from Cystic Fibrosis since birth.
We are hoping to raise funds to provide Harry with the necessary medical aids to help him conquer this unfortunate illness which he bravely battles with each day.
We hope to raise enough funds from the hike to provide Harry with a HFCWO (High Frequency Chest Wall Oscillation or Vest) which is an electric air pulse generator that connects to an inflatable jacket ( Vest) which will give Harry much needed relief from the symptoms of Cystic Fibrosis and which are not available on the NHS.
All funds raised will go directly to Harry.
Any donation big or small will be greatly appreciated by Harry and his family XX
- Roy Durn
- zoe tetley
- philip Jowett
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