So we’re starting this up to help him out with all of the adulty expenses that that comes with life, and also having a 9 year old son.
He has had massively low blood counts and multiple blood transfusions but so far nothing seems to be helping him. They’ve gone as far as wanting to remove his spleen even though there are differing options between his Hematologist and his Oncologist.
Even the doctoes at OHSU are unsure of what type of rare blood disease he has, this is a very serious unknown condition that they are trying vigourously to figure out, but after months have still come up empty handed.
Anything you can do to help this rad dad out is greatly appreciated in advance.
Heres an update from our favorite guy as of 8/15:
Thanks everyone! Just wanted to fill you in on how my time has been spent recently and why no one has seen me. In the past 6 weeks I’ve had 30+ blood draws, an ultrasound, a CT scan, a bone marrow biopsy, 6 blood infusions, a 7 hour surgery consultation at OHSU, 4 blood cultures, 2 chest X-rays, an ER visit, 6 nights at OHSU, and a 2 hour ambulance ride! Meanwhile my red, white, and platelet counts have been dropping daily. It’s terrifying and I feel like garbage most of every day. Hopefully they figure things out this week! Hope to be back out in the world seeing all of you soon.
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