Hi my name is Steve. My 19 month old son was diagnosed at 3 weeks of life with a rare genetic condition called KCNQ2 Developmental & Epileptic Encephalopathy. My wife Karsha and I underwent a traumatic 3 long weeks with Levi as he required many medical procedures, daily blood tests and multiple attempts with finding the correct medication to manage his seizures that were occurring physically and in the brain. At this present time there is no known Cure for KCNQ2.
My family and I were wanting to help raise much needed funds for research amd development to help find a cure in the hopes one day to help Levi and other children diagnosed. I'm entering the Melbourne Half marathon on Sunday the 12th of December in hopes to raise money and awareness for this rare geneticcondition. All proceeds raised will be directly linked to the KCNQ2 cure foundation in hopes that my families vision of finding a cure becomes a reality.
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