Help Rafa with treatment that will save his life
Donation protected
Hi, I'm Rafa, a very special boy who has a very rare syndrome, SMA, and I really need your help and support to get treatment. The treatment is very expensive, about GBP 1.5 Million , in addition to the treatment procedures, we need the most expensive medicine in the world, Zolgensma.
I have only 6 months to get the medication otherwise it will be too late and each day that go pass my condition deteriorates. I live in Brazil and our private medical insurance does not cover the treatment unfortunately.
My syndrome is SMA, do you know it???
Spinal Muscular Atrophy (SMA) is a rare, progressive and often lethal genetic disease that affects an individual's ability to walk, eat and ultimately breathe. SMA affects approximately one in every 10,000 live births and is the leading genetic cause of death in infants.
Please see further information on my Instagram @ameorafa
https://instagram.com/ameorafa?igshid=13q2479ebqzt8
Then hold Rafa's hand, let's go together!
God bless and thank you all !!!
I have only 6 months to get the medication otherwise it will be too late and each day that go pass my condition deteriorates. I live in Brazil and our private medical insurance does not cover the treatment unfortunately.
My syndrome is SMA, do you know it???
Spinal Muscular Atrophy (SMA) is a rare, progressive and often lethal genetic disease that affects an individual's ability to walk, eat and ultimately breathe. SMA affects approximately one in every 10,000 live births and is the leading genetic cause of death in infants.
Please see further information on my Instagram @ameorafa
https://instagram.com/ameorafa?igshid=13q2479ebqzt8
Then hold Rafa's hand, let's go together!
God bless and thank you all !!!
Organizer
Carolina Andrade
Organizer
England
