<div>Timo was born in November 2024, a beautiful, tiny angel.
</div>
<div>But just two months later, our lives were turned upside down when he began having epileptic seizures. After many examinations and genetic tests, Timo was diagnosed with <strong>WOREE syndrome (WWOX-related encephalopathy)</strong> — a very rare and severe genetic condition affecting only about <strong>100 people worldwide</strong>.
</div>
<div><a href="https://timo-asbl.lu/help-timo/" target="_blank" rel="noreferrer noopener"><strong><a href="https://timo-asbl.lu/help-timo/" target="_blank" class="" rel="nofollow noopener noreferrer">https://timo-asbl.lu/help-timo/</a></strong></a>
</div>
<div>Timo Hirtz – BCEELULL – LU84 0019 7855 5398 6000
</div>
<div><br />
</div>
<div><strong>What this means for Timo?</strong>
</div>
<ul>
<li>Timo suffers from epileptic seizures and infantile spasms. With a combination of <strong>Vigabatrin, different Vitamin B supplements and a Ketogenic diet</strong>, his epilepsy is currently under control.
</li>
<li>WOREE causes profound global delay and severe cognitive impairment, which is showing more and more in Timo. As of today, at 8 months old, Timo <strong>barely moves</strong>, has <strong>very little neck and head control</strong>, and <strong>aside from occasional crying, is completely non-vocal</strong> — and he will likely remain so.
</li>
<li>The average life expectancy for children with WOREE is<strong> just 3 to 4 years.</strong>
</li>
</ul>
<div><br />
</div>
<div><strong>There is Hope: A Customized Gene Therapy Could Save Him</strong>
</div>
<ul>
<li>The estimation for the development and application of the treatment costs <strong>€300'000</strong>.
</li>
<li><strong>Time is critical</strong> — The sooner the treatment begins, the better Timo's chances. We simply don't know how much time Timo has left.
</li>
</ul>
<div><br />
</div>
<div><strong>How You Can Help:</strong>
</div>
<div>We need urgent funding to:
</div>
<ul>
<li>Develop and administer Timo's custom gene therapy
</li>
<li>Give him the only known chance at a better life
</li>
<li>Help us fight against this devastating disease
</li>
</ul>
<div>Every <strong>donation</strong>, every <strong>share</strong>, every act of support and kindness brings us closer to giving Timo a future.
</div>
<div>Even if you can’t donate, simply <strong>sharing this page</strong> could help us reach someone who can.
</div>
<div><a href="https://today.rtl.lu/news/luxembourg/a/2279739.html" target="_blank" rel="noreferrer noopener"><a href="https://today.rtl.lu/news/luxembourg/a/2279739.html" target="_blank" class="" rel="nofollow noopener noreferrer">https://today.rtl.lu/news/luxembourg/a/2279739.html</a></a>
</div>
<div><a href="https://www.rtl.lu/news/national/a/2280367.html" target="_blank" rel="noreferrer noopener"><a href="https://www.rtl.lu/news/national/a/2280367.html" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.rtl.lu/news/national/a/2280367.html</a></a>
</div>
<div><a href="https://www.lessentiel.lu/fr/story/au-luxembourg-les-parents-de-timo-ont-besoin-de-500-000-euros-pour-le-sauver-103377922" target="_blank" rel="noreferrer noopener"><a href="https://www.lessentiel.lu/fr/story/au-luxembourg-les-parents-de-timo-ont-besoin-de-500-000-euros-pour-le-sauver-103377922" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.lessentiel.lu/fr/story/au-luxembourg-les-parents-de-timo-ont-besoin-de-500-000-euros-pour-le-sauver-103377922</a></a>
</div>
<div><br />
</div>
<div><strong>Please help us give our son a chance to live.</strong>
</div>
<div><br />
</div>
<div>With love and hope,
</div>
<div><strong>Timo's family</strong>
</div>
<div><br />
</div>
<div>Together with T.I.M.O. - Trust in Medical Opportunities a.s.b.l.
</div>
<div><br />
</div>
<div><em>(Updated 18.07.2025)</em>
</div>

Ophélie De Brito

Serge Schmit

Gorazd Bezlaj

Charlotte Coeme

Anonymous

Stewart Kam Cheong

Marie-Jeanne Urbing

Laura Davidel

Anna Di Sabato

Sophie Weffling

Matias Canibe

Sarah Weber

Anastasia Salanovich

Thaissa Martha Ba Evina

Alessandro Natola

Help Timo fund a gene therapy cure to save his life

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Help Timo fund a gene therapy cure to save his life

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