At just five weeks of age, we brought Ryland into his pediatrician with what we thought was a bad flu. Our pediatrician examined him and recommended that we head over to the Stollery, the Stollery was better equipped complete additional testing as he suspected Ryland did not have the flu, something more serious was going on. Upon arrival to the Stollery, a small team was waiting where they immediately took Ryland in for a CT Scan and an MRI. Shortly after it was concluded Ryland had Aqueductal Stenosis, a narrowing of the aqueduct of Sylvius which blocks the flow of cerebrospinal fluid (CSF) in the ventricular system. This blockage led to Ryland having Hydrocephalus, an accumulation of cerebrospinal fluid (CSF) occurs within the brain, causing increased pressure inside the skull. Ryland was taken to surgery shortly after to place a shunt system (to keep him alive), a device permanently implanted inside the head and body to drain excess fluid away from the brain the relieve the pressure buildup which was causing Rylands nausea and vomiting, sleepiness, and visual abnormalities.
Unfortunately there can be number of complications associated with shunt placement and Ryland seemed to have them all. Many of the complications required an immediate shunt revision (brain surgery), he had several before he turned 1. One of the revisions took place on his 1st birthday and caused a brain bleed leaving him paralyzed on his left side for a few days. In Rylands pursuit to a in pursuit of a healthier future he has faced multiple shut challenges, myofascial lengthening of his leg, eye surgery, experiences seizures, has been diagnosed with cerebral palsy, and some of his skull around his temple has been permanently removed. He has also endured many MRI’s CT scans, EEG’s, X-rays, regular visits to the Stollery and countless months of rehabilitation that will continue for the rest of his life.
Ryland is now 10 years old (time flies); he is a happy, sensitive, determined, charismatic and compassionate boy with a love for learning and a love for people. He is a huge Oilers fan, loves fishing and camping, excellent at math, loves his sisters, his dog Guiness and will probably beat you on the basketball court in a game of 21.
Let's help the Noble family pay for some of Ryland's considerable healthcare costs and lost income due to tending to his needs.