<div>PLEASE donate and help SAVE THE LIFE of JAX!!
</div>
<div><br />
</div>
<div>Jax Ramirez is a 9 year old boy from Zelienople, PA and the son of my dear friends - Missy and Pete Ramirez. I'm starting this Go Fund Me because Jax desperately needs a LIFESAVING treatment for his life-threatening autoimmune disease - IPEX. There is FINALLY a treatment option available for him in California and we need YOUR help to get him there!!! This diseases forces them to live in isolation and away from all germs which are fatal to him. After searching for a stem cell match for over 2 years and finding no match, time is running out! He now has the chance for a lifesaving treatment through a clinical trial in Stanford, California (San Francisco Bay area) starting in JUNE! But there are MANY challenges and LOTS of costs associated for them to live there for several months. Their family desperately needs help with funding to make this happen - and SAVE JAX'S LIFE!!
</div>
<div><br />
</div>
<div>For the past 2.5 years, Missy has been scouring the earth and working tirelessly (in addition to her full-time job as a Pine-Richland school psychologist- and mother of 2 little boys who can barely leave the house) to set up drives and get media awareness to find Jax a stem cell match through her "Be The Match for Jax". Unfortunately, they have been unsuccessful in this process. Time is running out! Most children with IPEX don't even live to be 2 years old - but Jax and his parents are FIGHTERS, defying the odds and Will. Not. Give. Up. Missy is the definition of a mama warrior and starts every day putting on a brave face ready to do whatever it takes to conquer this nightmare!
</div>
<div><br />
</div>
<div>Jax now has the opportunity to partake in a clinical trial at Stanford, CA that could save him! This trial - with the world's leading IPEX doctors - will last several months of "gene therapy" meaning the family will have to uproot, take a leave from work, safely transport Jax across the country and live in one of the highest cost of living areas for several months.
</div>
<div><br />
</div>
<div>Please find it in your hearts to donate to this family who has been in this fight every single day. They go to bed and wake up each day in fear - but also with hope. Let's be their hope.
</div>
<div><br />
</div>
<div>Here is the link detailing the treatment: <a href="https://www.stanfordchildrens.org/en/services/stem-cell-transplantation/conditions/ipex-syndrome.html" target="_blank" rel="noreferrer noopener"><a href="https://www.stanfordchildrens.org/en/services/stem-cell-transplantation/conditions/ipex-syndrome.html" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.stanfordchildrens.org/en/services/stem-cell-transplantation/conditions/ipex-syndrome.html</a></a>
</div>
<div><br />
</div>
<div>If you would like more details- I invite you to read Missy's latest update:
</div>
<div><br />
</div>
<div>"For those of you who don't know, since diagnosis over 2 years ago, I have been in discussions with Dr. Rosa Bacchetta and Dr Torgerson, in California and Seattle, respectively. They are the IPEX experts, internationally.
</div>
<div><br />
</div>
<div>It has been grueling, where there were many days and months I was so defeated because we were so close to being accepted and uprooting ourselves, to find out it just wasn't the right time. During that time, the study found that Jax produces proteins that fights a virus (which is good - we all do this) but he also produces an antibody that kills the proteins to kill the virus, creating a storm in his body. We finally have the answer to 'why' he gets so sick. They didn't want him traveling. It felt like every turn, an answer would turn into defeat. It felt as if the very things I hoped for (answers) made more obstacles for a miracle.
</div>
<div><br />
</div>
<div>BUT, for those of you who know me well, I never take 'no' as the final answer. There is always a solution. ALWAYS. I tell Jax 'some things are hard, but we can do hard things', so I have to take my own advice. And, I did the hard things.
</div>
<div><br />
</div>
<div>As of last night, Stanford Medical let us know Jax still does not have a match. This is an important aspect of the journey, because if we had a match, we would have to make a decision - take the 'known cure' (which likely will create more medical issues) OR take the unknown - Stanford. The answer was 'easy' last night, we do not have a match at this juncture, so we have been PRELIMINARILY accepted to the Stanford Medical study with the IPEX experts. If all goes to plan, we will be in Palo Alto June 17th, and Jax will be transplanted in July with his genetically modified cells (gene therapy, see link below).
</div>
<div><br />
</div>
<div>In the midst of this, we had to figure out our journey to the West Coast. This was an impossible mission a year ago. The FDA is very persnickety about travel (we are under the FDA because this is a Phase 1 trial). We couldn't drive which for Jax is the safest way. We couldn't take a commercial flight, and there seemed to be no hope. THEN, my little tiny loving town of Zelienople came through and we have transportation to California!
</div>
<div><br />
</div>
<div>NOW, we are faced with lodging. The Ronald McDonald House is transient, and just rooms. The four of us cannot safely stay, 3000 miles from home in a communal area. It is just not right for us, our purpose or journey. This is where you come in. We need a HIVE mind. Can you think of ANYONE you can contact that may have access to private lodging for us in the northern area of California? Think anything and everything! Someone always knows someone! We have to stay within 30 miles of Stanford Medical (Stanford, CA) per the FDA.
</div>
<div><br />
</div>
<div>We need your help and have limited time!"
</div>

Jenn Carr

Anonymous

Noel Jakiela

Viviane Webb

Alexis Robbins-Walters

Sarah Tompkins

Mark Mlynarski

Kathy Sanford

Jess Janczewski

Robbie Gary

Halla Dari

Tami Smith

Christy Owen

Wendy Deviney

HELP SEND JAX TO CALIFORNIA FOR LIFESAVING TREATMENT

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

Eligible for Profile Share Badge

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

isEligibleForProfileBadge

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.3.0 and above

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

HELP SEND JAX TO CALIFORNIA FOR LIFESAVING TREATMENT

Still $11,448 to go. Help us build momentum.