I recently wrote about my experience with Lyme Disease (click here
for the long version) and some of you may know that I’ve been struggling with this illness for the past 8 years.
In 2018, I had a pretty horrific relapse where I was bedridden and on several IV antibiotics through a PICC line for about 7-8 months.
Prior to this relapse, I had seen countless doctors across MA and tried numerous antibiotics and herbal supplements. Unfortunately, I still haven’t been able to reach remission.
During my relapse this past year I needed to take a leave of absence from work. I suffered with debilitating nausea, anxiety, chest pain, muscle & joint pain, head pressure, fatigue, brain fog, and a lot of scary side effects from the various medications.
I would wake up and feel crushing pain throughout my body. Even though I was lying in bed, my heart would beat so fast; it felt like I had just run a marathon. The constant insomnia kept me up at night and any simple sound in the morning would feel physically assaulting. I could barely move my arms and legs, and it hurt to breathe. I felt trapped, and I spent most mornings wondering how I had made it through the previous night. It’s hard to describe the amount of fear and anxiety I was experiencing, but I was petrified every minute of every day, thinking it would never end.
Thankfully, after a gauntlet of different medications, I started to make some great progress back in February. Since then I’ve been able to start work again, remotely from home on a part time basis. Although I’ve been able to get parts of my life back, I still have recurring symptoms that affect my day to day life, including muscle and joint paint, fatigue, migraines, and nausea.
If I do too much and overexert myself it can take me days to recover, often sending me back to my bed to rest. I still wake up every morning and think, “Am I okay today?”. The fear of everything happening all over again stays with me, and I still have trouble finding peace of mind. My doctors believe that my best chance of a full recovery is to pursue a 3-week intensive, hyperthermia treatment at Klinik St. Georg in Germany.
Hyperthermia is a cutting-edge Lyme treatment, which raises the core body temperature to 106.88 F. The treatment is not currently available in the US, but it reports a 70% success rate for patients like me with chronic Lyme. The costs for two rounds of hyperthermia and antibiotic treatments, recovery and detoxification programs, supplements, lodging and travel will be very expensive and will have to be paid for out-of-pocket.I believe that this treatment will help me fully recover and get my health back to where it once was. It will also allow me to have healthy children, as studies have shown that Lyme disease can be transferred in utero.
I am fortunate that a Lyme foundation has agreed to sponsor a portion of the cost in getting this treatment, and this fundraiser is an effort to help cover the rest. I am deeply grateful for any and all support you’re able to give, whether it be financial or positive prayers/vibes! The amount of support I’ve received over this past year is unmeasurable, and my friends and family have given me so much hope. Thank you for your help and allowing me to share my story. Please feel free to share with others to help create awareness for this debilitating disease. I’m going to prove that there is life beyond Lyme! Treatment Cost Breakdown:- - 23.000.00€ + 2.849,70 € room and board (21 nights) = 25,849.70€ ($29,245.80 USD) *This will all have to be paid prior to arriving at the Klinik.*These figures do not include travel and other expenses*
----------------------------------------------------------------------------------------Learn about Hyperthermia Treatment from Dr. Douwes: https://www.youtube.com/watch?reload=9&v=3bId9ycVudsKlinik St Georg website: https://www.klinik-st-georg.de/en/klinik-st-georg/lyme-specialized-center/https://www.boston25news.com/news/controversial-clinic-uses-heat-to-cure-lyme-disease/862382139https://www.youtube.com/watch?v=BrJuziabR0o