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Help our little warrior get a diagnosis &treatment

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As most of you know, we’ve been in the hospital going on 8 times now since November 15th. We will be on our 3rd hospital admission tomorrow out of the 8 times we’ve been. We were just discharged yesterday & less than 24 hours later I received the phone call this morning that we need to go back to be re-admitted again. I am absolutely heart broken I have to explain to my 5 year old again that we have to go back for another stay, get another IV(they blew 2 veins out last stay before putting the IV in her hand) & do another invasive test that she cannot be put under for now. We had less than 24 hours of being home before receiving the call that had me buckled at the knees this morning. She spent 7 long days in the children’s hospital before being discharged on 1-5-2020. Her previous stay was right after her 5th birthday(December 11th) on December 15th for 4 days so we haven’t had much time at home at all!! On December 15th she was admitted & had an NG tube placed in her nose as well as an IV for 4 days. We are still searching for the answers & the diagnosis we desperately need & I will not stop until we get that!! I am giving her a two day break before having her admitted again on 1-8-2020. Once this test is done we will be discharged again(hopefully less than 3 days for this) & referred to an outpatient urology clinic. This clinic does not take payments & the first visit will be $312. We are not sure how many visits a week she will need yet or how many total but it will definitely be more than a couple. I am praying this test that’s going to be done by the hospital shows something & we get a proper diagnosis. As of right now the urologist thinks she has what’s called a Neurogenic bladder. This has greatly impacted our lives & I will not stop until my baby is back in good health. This came from no where so we were definitely not prepared for this. I have an entire stack of hospital bills & Dr’s bills from all of this that I haven’t even gotten to open yet. With one income this is our last resort! I will need to not only pay for Khloe’s Urology visits but also a daycare for Harper as I can’t do it all by myself at the hospital every day, medications for Khloe, Dr bills, time off work & the list goes on. I am not one to ask for help EVER but I surrender during this time. I need major help for my baby right now & sadly in America if you don’t have health insurance or a lot of money, you aren’t getting far!

If you can’t donate, please share. Please keep Khloe & our entire little family in your prayers as we navigate through this tough time! Never in a million years did I guess we’d be here but here we are!
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Donations 

  • Anonymous
    • $50 
    • 4 yrs
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Organizer

Alexandrea Johnston
Organizer
Las Vegas, NV

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