<ul>
<li>For English, see below ↓
</li>
<li>Për gjuhën Shqipe shiko më poshtë ↓
</li>
</ul>
<div><br />
</div>
<div><strong>Wat als je pas 7 en 10 jaar oud bent en je leven opeens volledig stil komt te staan?</strong>
</div>
<div>Dit overkwam onze twee jongens. Al 3 jaar lang zijn de meest vanzelfsprekende dingen in het leven voor hen slechts dromen.
</div>
<div>Naar school gaan, voetballen, muziekles volgen en buiten spelen met vriendjes, dat is wat ze het liefste deden. Nu is dit allemaal onmogelijk.
</div>
<div>Hun leven is nu gevuld met zenuwpijn, extreme uitputting, duizeligheid en wanhoop. We rouwen om alles wat ze niet meer kunnen, maar blijven vechten voor een betere toekomst voor onze twee jongens.
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<div>Dankzij alle lieve donaties die we tot nu toe hebben ontvangen, zijn we begonnen met behandelingen. Onze oudste zoon heeft inmiddels twee behandelingen gehad en begint langzaam maar zeker te herstellen. Afgelopen week is hij zelfs weer even op school geweest. Onze jongste zoon begint in augustus met de behandelingen.
</div>
<div><br />
</div>
<div>Onze kinderen worden behandeld door de gerenommeerde kinderarts dr. Danilo Buonsenso, werkzaam in het universitair ziekenhuis Agostino Gemelli in Rome.
</div>
<div><br />
</div>
<div>In Rome krijgen onze kinderen IVIG-behandelingen. Dit zijn behandelingen met immunoglobulinen, die al tientallen jaren worden toegepast bij veel verschillende aandoeningen. Helaas wordt IVIG in Nederland nog niet toegepast voor Long COVID, de aandoening waaraan onze jongens lijden. Hierdoor moeten wij als ouders alle kosten zelf betalen en wordt er niets vergoed.
</div>
<div><br />
</div>
<div>De kosten zijn enorm. De prijs van immunoglobulinen is de afgelopen maanden helaas fors gestegen.
</div>
<div><br />
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<div>Ieder kind heeft ongeveer zes behandelingen nodig, waarvan in ieder geval drie dit jaar. De kosten per behandeling bedragen voor onze jongste zoon ongeveer <strong>€ 8.500,- </strong>en voor onze oudste zoon ongeveer <strong>€ 10.500,-</strong>.Het verschil in de kosten zit in hun gewicht. De hoeveelheid medicatie wordt op basis van het lichaamsgewicht berekend.
</div>
<div>Voor zes behandelingen van onze jongste zoon is daarom ongeveer € <strong>51.000 nodig</strong>. Voor onze oudste zoon gaat het om ongeveer <strong>€ 62.000</strong>.
</div>
<div>Deze bedragen zijn voor ons te hoog om volledig zelf te kunnen dragen. Daarom hebben we jouw hulp nodig.
</div>
<div><br />
</div>
<div><strong>Wil je ons helpen om onze kinderen hun leven terug te geven?</strong>
</div>
<div>Elke donatie donatie groot of klein helpt ons enorm!
</div>
<div><br />
</div>
<div>Tip: je kunt de vrijwillige extra donatie van GoFundMe op 0 zetten
</div>
<div><br />
</div>
<div>Ons verhaal kun je ook lezen in <a href="https://www.destadamersfoort.nl/lokaal/achtergrond/1281278/broertjes-samen-naar-italie-voor-behandeling-long-covid" target="_blank" rel="noreferrer noopener">De Stad Amersfoort</a>
</div>
<div><br />
</div>
<div>Meer informatie over dr. Danilo Buonsenso en zijn werk is te zien in deze video van <a href="https://www.bnnvara.nl/videos/605777" target="_blank" rel="noreferrer noopener">Radar</a>.
</div>
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<div><strong>English:</strong>
</div>
<div><br />
</div>
<div><strong>What if you are only 7 and 10 years old and your life suddenly comes to a complete standstill?</strong>
</div>
<div>This is what happened to our two boys. For the past three years, the most ordinary parts of life have been nothing more than dreams to them.
</div>
<div><br />
</div>
<div>Going to school, playing football, taking music lessons and playing outside with friends, those were the things they loved most. Now, all of this is impossible.
</div>
<div><br />
</div>
<div>Their lives are now filled with nerve pain, extreme exhaustion, dizziness and despair. We grieve for everything they can no longer do, but we will never stop fighting for a better future for our boys.
</div>
<div><br />
</div>
<div>Thanks to all the generous donations we have received so far, we have been able to begin their treatments.
</div>
<div><br />
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<div>Our oldest son has now received two treatments and is slowly but surely beginning to recover. Last week, he was even able to return to school for a short while. Our youngest son will begin treatment in August.
</div>
<div><br />
</div>
<div>Our children are being treated by the renowned paediatrician Dr Danilo Buonsenso at the Agostino Gemelli University Hospital in Rome.
</div>
<div><br />
</div>
<div>In Rome, our children receive IVIG treatment. IVIG is a treatment using immunoglobulins and has been used for many different conditions for decades. Unfortunately, IVIG is not yet offered in the Netherlands for Long COVID, the condition our boys are suffering from. This means that we, as their parents, must pay all the costs ourselves, as none of the treatment is reimbursed.
</div>
<div><br />
</div>
<div>The costs are enormous, and unfortunately, the price of immunoglobulins has risen significantly in recent months.
</div>
<div><br />
</div>
<div>Each child needs approximately six treatments, at least three of which will take place this year. Each treatment costs around <strong>€8,500</strong> for our youngest son and <strong>€10,500</strong> for our oldest son. The difference in cost is due to their weight, as the amount of medication required is calculated based on body weight.
</div>
<div><br />
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<div>Six treatments for our youngest son will therefore cost approximately <strong>€51,000</strong>. For our oldest son, the total will be approximately <strong>€62,000</strong>.
</div>
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<div>These amounts are simply too high for us to cover entirely on our own. That is why we desperately need your help.
</div>
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<div><strong>Will you help us give our children their lives back?</strong>
</div>
<div>Every donation, big or small, helps us enormously!
</div>
<div><br />
</div>
<div>Tip: You can set GoFundMe’s optional contribution to €0
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<div><br />
</div>
<div><strong>Shqip:</strong>
</div>
<div><br />
</div>
<div><strong>Paramendo të ishe vetëm 7 dhe 10 vjeç dhe jeta jote papritur të ndalonte plotësisht</strong>
</div>
<div>Kjo u ndodhi dy djemve tanë. Që 3 vite, gjërat më të zakonshme të jetës kanë mbetur vetëm ëndrra për ta.
</div>
<div><br />
</div>
<div>Të shkonin në shkollë, të luanin futboll, mësime muzike dhe të luanin jashtë me shokët, këto ishin gjërat që donin më shumë. Tani, asgjë nga këto nuk është më e mundur.
</div>
<div><br />
</div>
<div>Jeta e tyre tani është e mbushur me dhimbje nervore, rraskapitje ekstreme, marramendje dhe dëshpërim. Na dhemb zemra për gjithçka që nuk mund të bëjnë më, por vazhdojmë të luftojmë për një të ardhme më të mirë për dy djemtë tanë.
</div>
<div><br />
</div>
<div>Falë të gjitha donacioneve që kemi marrë deri tani, kemi mundur të fillojmë trajtimet.
</div>
<div><br />
</div>
<div>Djali jon i madh ka kryer tashmë dy trajtime dhe po fillon ngadalë, por me siguri, të përmirsohet. Javën e kaluar ai madje mundi të shkonte përsëri për pak kohë në shkollë. Djali ynë më i vogël do t’i fillojë trajtimet në gusht.
</div>
<div><br />
</div>
<div>Fëmijët tanë po trajtohen nga pediatri i mirënjohur Dr. Danilo Buonsenso, i cili punon në Spitalin Universitar Agostino Gemelli në Romë.
</div>
<div><br />
</div>
<div>Në Romë, fëmijët tanë marrin trajtime me IVIG. Këto janë trajtime me imunoglobulina, të cilat përdoren prej dekadash për shumë sëmundje të ndryshme. Fatkeqësisht, IVIG ende nuk përdoret në Holandë për trajtimin e Long COVID-it, sëmundja nga e cila vuajnë djemtë tanë. Për këtë arsye, ne si prindër duhet t’i paguajmë vetë të gjitha shpenzimet.
</div>
<div><br />
</div>
<div>Shpenzimet janë jashtëzakonisht të larta. Fatkeqësisht, çmimi i imunoglobulinave është rritur gjatë muajve të fundit.
</div>
<div><br />
</div>
<div>Secilit fëmijë i nevojiten rreth gjashtë trajtime, të paktën tri prej të cilave do të kryhen këtë vit. Çdo trajtim kushton rreth <strong>8.500 €</strong> për djalin tonë më të vogël dhe rreth <strong>10.500 €</strong> për djalin tonë më të madh. Dallimi në lidhet me peshën e tyre, pasi sasia e medikamentit llogaritet në bazë të peshës trupore.
</div>
<div><br />
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<div>Për gjashtë trajtimet e djalit tonë të vogël nevojiten rreth <strong>51.000 €</strong>. Për djalin tonë të madh nevojiten rreth <strong>62.000 €</strong>.
</div>
<div><br />
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<div>Këto shuma janë shumë të larta që ne t’i përballojmë plotësisht vet. Prandaj kemi nevojë për ndihmën tënde.
</div>
<div><br />
</div>
<div><strong>Na ndihmoni që ti ja rikthejmë jetën fëmijëve tanë!</strong>
</div>
<div>Çdo donacion, i madh apo i vogël, na ndihmon jashtëzakonisht shumë!
</div>
<div><br />
</div>
<div>Këshillë: kontributin vullnetar për GoFundMe mund ta vendosni në 0 €
</div>

Bradley French

Gilia Steffens

Anonymous

Joris Schoonderwoerd

Erica Swensen

Jaap Meijer

Jacintha Dijkstra-Nota

Pietie Prins

Simon Rutz

Jolanda Koorn

Noha Lammerts van Bueren

Tamara Nikkels

Linda Van der kolk

Help twee zieke broertjes op weg naar herstel

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

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paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

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Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

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Native 11.4.0 and above

UC Tipping v20250107

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

isEligibleForProfileCommentBadge

donationCadence

isActiveFundraiser

isPartner

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npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.3.0 and above

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

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challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

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iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

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