<div>Hi! My name is Olivia. I'm 22 years old, a mother, and one of 17 people in the United States and about 600 worldwide.











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<div><strong>I have a neurodegenerative disease called Stiff Person Syndrome PERM, which is the most fatal version on the spectrum, with a 100% death rate between 6 weeks and 3 years without immunotherapy treatment. I have been fighting for my life and to find my diagnosis, and I finally have after a year and a half. I experience spasms intense enough to break bones, rip muscle fibers just to move, as well as autonomic disfunction that causes me to not be able to regulate my bodies temperature, causes my circulatory system to shut down, makes my heart beats unsteady and the most common cause of death is asphyxiation due to spasms in the diaphragm.</strong>






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<div><strong>I am on a mostly liquid diet at this time because anything I consume causes extreme inflammation I and cannot wait to eat again. This disease causes inflammation in the brain, brain stem, and spinal cord meaning it affects every aspect of my body. Nothing is the same, but I will keep moving for as long as I can. </strong>






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<div><span>Health and exercise have always been a passion of mine. Please help me become more like myself again! <br /></span>




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<div><span>I developed this rare condition because of severe trauma, devastating </span><span>neglect, debilitating amounts of stress, abuse, and adult responsibilities I experienced throughout my young childhood and early adulthood due to significant family struggles and being my mother’s caregiver after her TBI and having most household responsibilities placed onto me. I have, for the most part, always figured it out on my own, and this is the first time I am completely unable to. My husband is all of my support. </span><strong>I started immunotherapy, which is my only chance of survival, I have to get them life-long.</strong>
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<div>I was once active in the gym 5 or 6 days a week, and taking my son to the park to play and wander the world together that same day. I graduated high school at 16 years old with plans to work in the Medical field myself. I have always remained productive and focused on my goals. Then suddenly, my nervous system had had enough, and it began to kill me while worsening, and increasingly dangerous symptoms continued to develop.











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<div>I am still fighting to stay strong and maintain the daily care this disease requires, always be there for others, and be the best mother I can be, but every day gets harder as my condition worsens and my husband has had to work various side hustles to afford my medications while being my full-time caregiver. 










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<div>If you are able, please donate any amount or just share with your friends and family! You will save my life, and I will be forever grateful for this opportunity.











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<div>If you are interested in more information about my condition, I provided resources here:
<a href="https://www.stiffperson.org/understanding-sps" target="_blank" rel="noreferrer noopener"></a><a href="https://www.stiffperson.org/understanding-sps" target="_blank" rel="noreferrer noopener"></a><a href="https://www.stiffperson.org/understanding-sps" target="_blank" rel="noreferrer noopener"></a><a href="https://www.stiffperson.org/understanding-sps" target="_blank" rel="noreferrer noopener"></a><a href="https://www.stiffperson.org/understanding-sps" target="_blank" rel="noreferrer noopener"></a><a href="https://www.stiffperson.org/understanding-sps" target="_blank" rel="noreferrer noopener"></a><a href="https://www.stiffperson.org/understanding-sps" target="_blank" rel="noreferrer noopener"></a><a href="https://www.stiffperson.org/understanding-sps" target="_blank" rel="noreferrer noopener"></a><a href="https://www.stiffperson.org/understanding-sps" target="_blank" rel="noreferrer noopener"></a><a href="https://www.stiffperson.org/understanding-sps" target="_blank" rel="noreferrer noopener"><a href="https://www.stiffperson.org/understanding-sps" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.stiffperson.org/understanding-sps</a></a>
<a href="https://rarediseases.info.nih.gov/diseases/13110/progressive-encephalomyelitis-with-rigidity-and-myoclonus" target="_blank" rel="noreferrer noopener"></a><a href="https://rarediseases.info.nih.gov/diseases/13110/progressive-encephalomyelitis-with-rigidity-and-myoclonus" target="_blank" rel="noreferrer noopener"></a><a href="https://rarediseases.info.nih.gov/diseases/13110/progressive-encephalomyelitis-with-rigidity-and-myoclonus" target="_blank" rel="noreferrer noopener"></a><a href="https://rarediseases.info.nih.gov/diseases/13110/progressive-encephalomyelitis-with-rigidity-and-myoclonus" target="_blank" rel="noreferrer noopener"></a><a href="https://rarediseases.info.nih.gov/diseases/13110/progressive-encephalomyelitis-with-rigidity-and-myoclonus" target="_blank" rel="noreferrer noopener"></a><a href="https://rarediseases.info.nih.gov/diseases/13110/progressive-encephalomyelitis-with-rigidity-and-myoclonus" target="_blank" rel="noreferrer noopener"></a><a href="https://rarediseases.info.nih.gov/diseases/13110/progressive-encephalomyelitis-with-rigidity-and-myoclonus" target="_blank" rel="noreferrer noopener"></a><a href="https://rarediseases.info.nih.gov/diseases/13110/progressive-encephalomyelitis-with-rigidity-and-myoclonus" target="_blank" rel="noreferrer noopener"></a><a href="https://rarediseases.info.nih.gov/diseases/13110/progressive-encephalomyelitis-with-rigidity-and-myoclonus" target="_blank" rel="noreferrer noopener"></a><a href="https://rarediseases.info.nih.gov/diseases/13110/progressive-encephalomyelitis-with-rigidity-and-myoclonus" target="_blank" rel="noreferrer noopener"><a href="https://rarediseases.info.nih.gov/diseases/13110/progressive-encephalomyelitis-with-rigidity-and-myoclonus" target="_blank" class="" rel="nofollow noopener noreferrer">https://rarediseases.info.nih.gov/diseases/13110/progressive-encephalomyelitis-with-rigidity-and-myoclonus</a></a><br />










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<div>Thank you!











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Help Olivia Survive Rare Neurological Disease

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

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fund country is US and user language is English

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comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

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fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

Eligible for Profile Share Badge

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UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

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ai_title_page

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openai

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Native 11.3.0 and above

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

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Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

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Survicate

appVersion is at or above 12.8.0

Non-charity fund

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challenge-fundraisers

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New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Help Olivia Survive Rare Neurological Disease

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