<div>We are Justin and Kiya, proud parents to two incredible children, Noelle and Lucca. Recently, our world was shattered when <strong>both</strong> of our children were diagnosed with Chediak-Higashi Syndrome - an extremely rare, often debilitating, and often terminal genetic disorder.
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<div>As fewer than 500 cases have ever been documented worldwide, it's bewildering to us that we are suffering this trial with <em>both</em> our children. We awake grieved all over again each morning, and are still trying to process that this is our daily reality - one that brings fear, grief, and uncertainty. However, we serve an almighty and powerful God, and have also been encouraged by the inherent goodness of family, friends, and strangers around us, all of whom have brought us strength, hope, encouragement, and fierce determination.
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<div>We’re just beginning this journey, and while we don’t fully know what lies ahead, we do know that our needs will grow and shift over time. Right now, we’re preparing for:
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<div>• Specialized medical care and a possible year-long relocation to Cincinnati
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<div>• Unexpected or uncovered treatment costs
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<div>• Childcare needs for medical appointments and necessary errands when they need to remain isolated
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<div>• Christian counseling that may not be fully covered with insurance
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<div>• Intimate family vacations to make as many memories as possible
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<div>• And many unknowns that come with such a rare diagnosis
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<div>We are reaching out with open hearts, asking for your support as we try to give our children the best possible care and a chance at a full life.
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<div>If you feel called to help, whether through donating, sharing our story, praying with fervor, or simply keeping us in your thoughts, we are endlessly grateful. Every gesture brings us one step closer to hope, healing, and possibility.
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<div>Please consider donating today and being a part of our fight. Your kindness truly matters, and we are so grateful for the outpouring of love and support with which we've already been blessed.
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<div>With love, faith, and gratitude,
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<div>The Thompsons
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Help Noelle and Lucca Overcome Chediak-Higashi Syndrome

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