<div>Hi, We are Brendan and Nicola Barry parents of Shauna and Michael Barry (age 8)and we live In Drumshanbo Co.Leitrim.
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<div>Michael was born with a genetic deletion Contiguous XP21 deletion syndrome which is very rare.This deletion leads to the co-occurrence of several related genetic disorders, including Duchenne muscular dystrophy (DMD), congenital adrenal hypoplasia (CAH), and glycerol kinase deficiency (GKD).
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<div>Duchenne muscular dystrophy is a terminal muscle wasting condition which causes a progressive loss of muscle in every organ and part of the body and usually affects boys.
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<div>Michael has never walked unaided and is a wheelchair user and is not the typical scenario where boys with Duchenne usually do walk but gradually loose the ability to walk as the disease progresses.
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<div>Last year we were approached by the Moran family who wanted to donate money towards helping Michael in memory of their son and brother Ronan Moran (Shroom ,Who was Buddies with Michael) in conjunction with Allen Gaels gaa who were raising funds for local groups and people with the inaugural Shroomsday events.
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<div>With €2000.00 being donated to Michael from the Shroomsday event, Allen gaels have again offered to donate funds from a 25 card drive to Michael on 27th April 2025 and we plan to spend this on the purchase of an all terrain vehicle like a quad with enclosed cab which would be much safer and drier for Michael to be able to go farming
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<div>and see the cows.
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<div>It will cost approximately between €15,000 and €20,000.
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<div>We are setting up this go fund me if others would like to help with this purchase or other things to help Michael enjoy life to his full potential.
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<div>Michael is a typical boy when it comes to wanting to be out and about and on the farm and it is not possible to get a car around our farm.In the rtv he would have his own seat and be strapped in while being protected from the elements.
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Help Michael Barry enjoy being out and about and farming!!!

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