<div>Help Helen well with support for
</div>
<div>MOTOR NEURONE DISEASE.
</div>
<div><br />
</div>
<div>I am a 73 year old retired nurse, a mother and a grandmother . Up until eight months ago I lived an independent life driving to scenic spots , walking in nature and bringing my beloved dog for swims and visiting my grandchildren.
</div>
<div><br />
</div>
<div>Gradually, my mobility deteriorated as I began to find it harder to walk until I couldn’t walk at all.
</div>
<div><br />
</div>
<div>Things changing dramatically on June 2025 when I was diagnosed with Motor Neurone Disease.
</div>
<div><br />
</div>
<div>It has been a roller coaster of emotions , shock and stress since unfortunately.
</div>
<div><br />
</div>
<div>Motor Neuron Disease means the nerves that allow me to walk stop working to that I am no longer able to walk by myself. Unfortunately it is a progressive condition so I have to live with the uncertainty of this. There is no cure and only supportive treatment and it always gets worse rather than better.
</div>
<div><br />
</div>
<div>I have to organise carers for seven days. I now live and sleep downstairs and am totally dependent on my wheelchair and equipment. This has been an unbelievably difficult situation as I live alone and my children do visit but can only support so much.
</div>
<div><br />
</div>
<div>Furthermore, my house is totally inaccessible for a wheelchair so I cannot get out causing me to feel trapped in house.
</div>
<div><br />
</div>
<div>There are four deep steps up to front door and steps outside the back.
</div>
<div>I bought two temporary ramps so
</div>
<div>my children can wheel me out the odd time and we had to spend €2500 for a temporary ramps out the back.
</div>
<div><br />
</div>
<div>The financial strain has been tremendous using all my savings for medical appointments, transport, carers and for an accessible ramp at back door so I can at least wheel out back to enjoy garden.
</div>
<div><br />
</div>
<div>I am looking for funding to pay for the on-going carers that will commit to wheel me to the park and out to an accessible taxi so I can attend Community Supports . This will ease the feeling of isolation and get me reconnected. I get some care from the government but this only helps with basic care.
</div>
<div><br />
</div>
<div>I am also looking for support with accessibility in the house as it takes a very long time to get any grants approved in Ireland.
</div>
<div><br />
</div>
<div>I am very grateful for any donation made and I thank you for talking the time to read this.
</div>
<div><br />
</div>
<div><br />
</div>
<div>Helen
</div>
<div><br />
</div>
<div><br />
</div>
<div>Cost breakdown:
</div>
<div><br />
</div>
<div>€2500 modular ramp at back
</div>
<div>€1000 temporary ramps at front and back 
</div>
<div>€7k plus to arrnage ramp at front
</div>
<div>€120 a week min for private carer 
</div>
<div>€200 monthly for private transport
</div>
<div>€1500 for respite break if possible with carer 
</div>

Fariah Khan

Matthew Ward

Bernadette O'Sullivan

Elizabeth Conole

Kathleen Rayburn

Anonymous

James Hollarn

Dave Mc Partlin

Kathleen Higgins

Goretti Kelly

Caroline Fergus

SEAMUS EDWARD RYAN

Charlie Walker

Alan Kelly

Leon McCarron

Shane O'Brien

Katie Moran

Help me live well with Motor Neuron Disease

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Help me live well with Motor Neuron Disease

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