<div>Hi, my name is Sam Parker and I am setting up this fundraiser for Ben Parker my husband. Ben is in end stage kidney failure for the second time in his life and currently relies on dialysis 4-5 times per week to keep him alive. Ben has always struggled with his health having multiple health problems his whole life (chronic asthma and epilepsy). In 2018 when our daughter was only a few months old he became very unwell and soon after we were told he had kidney failure. After a year of being in and out of hospital and ending up in ICU with swelling on the brain he eventually had to start dialysis. We were then told of the extremely rare autoimmune disease Ben has which is called C3G. This disease affects around 2 in every million people and as it is so rare there is no known cure for the disease. We were lucky that Ben was then placed on the transplant list in October 2018 and he was really fortunate to receive a transplant in April 2019. He had been well for a few years following his transplant apart from some persistent chest infections due to his immune system being supressed. This was a few precious years where we could spend time as family and Ben could enjoy watching our daughter grow up. Unfortunately, as is often the case with this disease, in late 2023 Ben's kidney function began to deteriorate once again. A few months later in May 2024 he was once again facing the prospect of a life on dialysis and by this point was extremely poorly again. He missed a holiday to Cyprus for our friends wedding as he was too unwell to attend. We decided this time round we would try home dialysis to fit in better with our family life. We applied for a disabled facilities grant to turn our garage into a designated space for Ben to have his home dialysis in April 2024 and naively presumed we would be awarded some funding towards this. In the meantime we opted to put all the machines etc into our daughters bedroom as a temporary measure. In September 2024 we were hit with a blow when we were told we did not meet criteria for funding. We tried to appeal this but were unsuccessful. Our daughter has never known anything other than her Daddy always being poorly and it breaks my heart when she says things like "when Daddy gets better..." because I cannot bring myself to tell her that he never will.
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<div>Meanwhile, throughout all of this turmoil, we have both tried to keep down a job and look after our daughter. We cannot work full time due to our commitments to Ben's dialysis needs. The dialysis is around 4hrs per session 4-5 times a week and we try to do this whilst our daughter is at school to minimise the impact of her seeing Ben on dialysis. As we can only work part time we do not have the funding to pay for the garage conversion ourselves and have difficulty re-mortgaging to try and fund the project. And so, we find ourselves here reaching out to ask for any help at all to help us create a safe and sterile room for Ben to feel comfortable in doing his dialysis at home. If you have read this far then we would like to thank you. Any help at all towards our target would be greatly appreciated.
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Maria Culora

Elaine Lucas

Mary Minty

Yvonne Thompson

Lynda Day

Anonymous

Mrs S Watson

Family Members

Helen Baker

Charlotte Heald

Jayne Green

Lauren Butterwood

Gina Trent

Julia W

Jo Dransfield

Daniel Brookes

Lindsay Bamforth

Gemma Leathley

Help me fundraise to create a home dialysis room at home

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

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US + Non-charity COs Only

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fund country is US and user language is English

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Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

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3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

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Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

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checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

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fallback mode accounts

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Auto Thanks Feature Audience

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International Only

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braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

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Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

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UC Tipping v20250107

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Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

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Is Recurring Friendly

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NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

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Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

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challenge-fundraisers

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New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Help me fundraise to create a home dialysis room at home

Still £3,315 to go. Help us build momentum.