<div>Hi, we are Eric and Derek Crosby, and we're the founders of The Chiari Voices Foundation. We seek to educate, support and advocate for those affected by Chiari Malformation and Medullary Compression.
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<div>For years Derek lived in a world of unexplained pain, debilitating symptoms, and medical confusion.
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<div>But the physical pain was often second to the emotional toll: being told his symptoms were "all in his head," being dismissed by doctors, and feeling like he had to fight just to be believed.
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<div>His story, unfortunately, is the story of countless thousands in the Chiari Malformation community. We are navigating a complex neurological condition while also fighting a daily battle for validation.
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<div>Derek's Surgery in July:
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</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/96006477_176807712652597_r.jpeg" width="100%" />
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<div><strong>6-MONTHS LATER:</strong>
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</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/96006477_1768077162843130_r.jpeg" width="100%" />
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<div>This is why we are creating The Chiari Voices Foundation.
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<div>Our mission is simple: To ensure every person affected by Chiari Malformation is heard, believed, and supported.
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<div>We won't just be another non-profit. We will be a community built on lived experiences.
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<div>We will fill the "validation gap" by providing three core, free programs:
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<div>1. A Private Peer Support Network: A moderated, safe space for patients and caregivers to connect.
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<div>2. The "Validated Voices" Project: A blog and social media series dedicated to sharing our stories, unfiltered.
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<div>3. A Curated Specialist Directory: A community-built list of compassionate doctors, therapists, and specialists who listen and believe.
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<div>Here's where I need your help today.
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<div>To legally exist as a non-profit and accept tax-deductible donations to fund these programs, we need to file for 501(c)(3) status. This is a one-time legal cost.
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<div>Your donation today will not go to overhead or salaries. It will go directly to paying these essential, one-time startup fees.
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<div>Our First Goal: The "Launch Kit" ($600)
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<div>This is the bare-bones minimum we need to open our doors.
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<div><em>Florida Articles of Incorporation:	~$70</em>
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<div><em>IRS Form 1023-EZ (Small Nonprofits):	$275</em>
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<div><em>IRS Form 1023 (Full Application):	$600</em>
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<div><em>Florida Solicitation Registration:	$10–$400 (Based on revenue)</em>
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<div><em>Registered Agent/Legal Fees:	$100–$500+</em>
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<div>TOTAL INITIAL ESTIMATED COSTS = $1845+
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<div>The Stretch Goal: Our "First Year" ($1000)
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<div>If we hit our first goal, any additional funds will go directly to our first year of essential operating costs.
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<div>Why This Matters
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<div>While we are not 501(c)(3) compliant yet, your GoFundMe donation will be. 
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<div>Every dollar you give today is a seed. It's the legal key that unlocks our ability to build this community, apply for grants, and start the vital work of validating thousands of patients who feel invisible.
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<div>This mission is born from personal experience, but we cannot do it alone. Help us achieve our mission with a gift today.
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<div>For additional information regarding our cause, you can visit our site here at Chiari Voices, however, you cannot donate via the actual website currently as we are not a legal entity (yet!).
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<div>But you can donate here on our seed GoFundMe and help us start off on the right foot.
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<div>Please be one of our "Founding Donors" and help bring The Chiari Voices Foundation to life. The silenced voices will thank you.
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<div>Thank you for hearing his story, for believing in this, and for your continued support.
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<div>With humble gratitude on behalf of all those affected by Chiari Malformations (both patients and caregivers),
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<div>Derek &amp; Eric Crosby
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<div>Chiari Warriors
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<div>To learn more about our mission, visit us at <a href="https://chiarivoices.org" target="_blank" rel="noreferrer noopener"><a href="https://chiarivoices.org" target="_blank" class="" rel="nofollow noopener noreferrer">https://chiarivoices.org</a></a>.
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Elizabeth Pomroy

Help Eric and Derek Crosby Launch Chiari Voices Foundation

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