Help Kristina go to FOP gathering
Donation protected
I’m Kristina, and I’m 27 years old. 23 years ago, as a child of 4 years old, I was diagnosed with FOP (Fibrodysplasia Ossificans Progressiva). FOP is a rare condition with only 800 confirmed cases across the globe.
My experience is 1 of only 285 in the United States.
FOP is one of the rarest and most debilitating genetic conditions known to medicine. The condition causes bone to form in muscles, tendons, ligaments, and other connective tissues. These bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the entire body in bone.
The IFOPA (International FOP Association) hosts an annual gathering for families to connect with other families, patients, and the world’s leading clinicians. This is also an opportunity to grow as a community and learn more about new research and treatments for the condition. This year’s event will be held December 1 – 3 in San Francisco, California. While the event does not force costs of the conference onto those living with FOP, travel expenses, lodging, and other costs of the trip are still required. Family members traveling who are attending with me must cover all expenses, including the cost of the gathering. Because reservations must be made by November 20th, I need to meet my financial goals before that date to ensure attendance!
I sincerely thank you for your contributions.
My experience is 1 of only 285 in the United States.
FOP is one of the rarest and most debilitating genetic conditions known to medicine. The condition causes bone to form in muscles, tendons, ligaments, and other connective tissues. These bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the entire body in bone.
The IFOPA (International FOP Association) hosts an annual gathering for families to connect with other families, patients, and the world’s leading clinicians. This is also an opportunity to grow as a community and learn more about new research and treatments for the condition. This year’s event will be held December 1 – 3 in San Francisco, California. While the event does not force costs of the conference onto those living with FOP, travel expenses, lodging, and other costs of the trip are still required. Family members traveling who are attending with me must cover all expenses, including the cost of the gathering. Because reservations must be made by November 20th, I need to meet my financial goals before that date to ensure attendance!
I sincerely thank you for your contributions.
Organizer
Krys Michele
Organizer
Clementon, NJ
