Finally when Kinley was two her pediatrician ordered blood work which confirmed that she had a rare but potentially life threatening blood condition called hereditary angioedema. 1 out of 3 die from esophageal swelling.
Kinley needs to be infused and watched to make sure that the swelling doesn't progress. This year alone Kinley has 7+ attacks. I have missed work to be with her. It is emotionally, physically and financially stressful.
We are working on getting Kinley "maintenance" medication. This would be medicine that I will learn to infuse (IV) Kinley myself every three days for the rest of her life. Her illness can not be out grown.
DonationsSee top donations
- Kelly Palfi
- Debi Henry
- Ronnie Perrusio
- Sharon Italiano
- Michael Cowen
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more