CMT disease, also called hereditary motor and sensory neuropathy, results in smaller, weaker muscles with a loss of sensation, muscle contractions, and difficulty walking. Symptoms typically start in the feet and legs, but they may eventually affect one’s hands and arms.
I have gone from being able to walk with the aid of ankle/foot braces and walking sticks to finding it difficult to safely negotiate my one-level house. Unfortunately, I can no longer manage the four steps into my home from my garage and need to have a ramp installed for both my safety and the safety of those helping care for me. I am essentially “imprisoned” in my home. I am unable to care for my livestock and participate in gardening, a favorite activity of mine.
A friend in the construction trade has offered to build the ramp for me, charging only the cost of the materials. He has drafted a set of plans for the ramp and estimates the cost to be $1,440 for the lumber and other materials.
I do not have the funds to pay for the ramp and have reached out to my church and other community organizations. However, I have been unable to find help as these organizations are also strapped for cash in these difficult times.
I am unable to work as a CPR/first aid instructor or as a swim instructor. My husband works as much as he can after double knee-replacement and back surgery. It is difficult for us to meet our bills and the amount of money needed for a ramp is beyond our reach.
Friends have rallied to help and I have been gifted a used electric motor scooter; however, the scooter needs 2 new batteries. Each battery for the scooter will cost approximately $150.
In order to remain mobile and active in the community, I will also need a trailer hitch to fit my car; estimated cost installed is $1,000. I miss being able to be out and about, attend church, get to and from doctor appointments, and continue to work.
The ramp into my home, a working electric scooter, and a lift to carry it with me will give me freedom and allow me to be a part of the community as I used to be.
- Catherine Hyer
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