Harper is our sweet, strong little girl who faces something most people have never even heard of Capillary Malformation-Artereovenous Malformation (CM-AVM) syndrome caused by a RASA1 gene mutation. 
 
CM-AVM is a rare vascular condition that causes abnormal connections between arteries and veins in the body. For Harper, this doesn’t just mean a diagnosis—it means daily pain, swelling, and the constant risk of complications that can impact her muscles, nerves, and overall quality of life. 
 
As parents, we’ve done everything we can to find the best care for her here in the United States. We’ve met with specialists and explored every option available to us. Unfortunately, the treatments offered here come with serious risks, including potential damage to muscles and nerves—and even then, they often don’t provide the results Harper truly needs. 
 
That’s why we are taking a huge step. In October, we will first be traveling to New York City to attend a specialized “super clinic,” where we will have the opportunity to meet with Dr. Giacomo Colletti in person. From there, we will continue on to Italy to pursue a treatment called Modified Electrosclerotherapy (MEST), an option that has shown promising results for patients like Harper and offers hope for a better quality of life with less pain. 
 
This journey comes with a heavy financial burden. We will be paying entirely out of pocket for medical treatment, travel, and extended stays—both in New York City and at least 10 days overseas in Italy. Our goal is to raise $85,000 by her treatment on November 26th, Thanksgiving Day, to make this possible. 
 
Along the way, we’ve connected with other families just like ours—families who are also fighting for their children and trying to raise funds to travel abroad because they don’t have access to the care they need here in the U.S. 
 
We are sharing Harper’s story not only to ask for help, but to raise awareness for CM-AVM syndrome and advocate for treatments like MEST to become available in the United States. Families shouldn’t have to leave the country to give their children a chance at a better life. 
 
If you feel led to donate, share, or simply keep Harper in your thoughts, we are so incredibly grateful. Every bit of support brings us one step closer to giving her the care she deserves. 
 
Thank you for being part of Harper’s journey.

April Carrington

Debbie Robertson

Madison Schlegel

Anonymous

Rishivardhan Nagarajan

Adrienne Trier Bieniek

Stephen Kentner

Michel Biesterbosch

Anthony Maurice Jones

Hayley Cockburn

Jennifer Buildt

Susan Ojuko

Help Harper Get Life-Changing Treatment

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