Help Gabriel get to John Hopkins

My beautiful boy Gabriel Michael Seamus Kennedy was born July 19th 2018, yet soon after birth was diagnosed with terminal form of dwarfism called RCDP. Rhizomelic chondrodysplasya punctata. It is so rare that none of the Dr in Alaska have ever seen it. He has been thru countless tests in his short time here, yet they are just kind of guessing what to look for based on other children with his disease. We just found out his spinal cord has a sever tethering requiring surgery to fix and we have been granted the opportunity to see a leading specialist in this area at John Hopkins, unfortunately the insurance we have will not cover anything except the actual surgery and then only 80%. I have the opportunity to extend the quality of life for my little guy and the only thing holding us back is the cost of the copay, and travel to John Hopkins. He deserves to have the best possible life he can and its my goal in life to make that a reality! Please help us get Gabriel the care he needs so he can live a fuller life without pain or fear of spinal cord injury due to tethering. We have been given the greatest gift possible with his birth, wont you please help us get the help he needs and so greatly deserves.