Help Fund Crucial Excision Surgery for Jordan

Jordan (20 years old) has experienced pain and fatigue throughout her life although the cause was never known; In recent years these episodes have become more frequent and severe. Jordan has a rare form of Endometriosis which is growing uncontrollably and surrounding sensitive organs and nerves. The pain caused by Endometriosis has physically and mentally devastated Jordan's life. Jordan graduated top of her class and started college at the University of Florida with a full-ride Machen Florida Opportunity Scholarship, Jack Kent Cooke Scholarship, and Gold Level Bright Futures Scholarship. All of these accomplishments are threatened by Endometriosis. Research finds expert excision performed by a skilled Endometriosis Specialist results in removal of disease, preserved fertility, and little to no Endometriosis pain. We hope that with surgery and treatments thereafter she will be able to reclaim her life and successfully complete her education.

If you choose to donate, no amount is too small. If you are unable to donate but still wish to support Jordan's journey, please share this link by email or on social media and tag 3 friends to do the same!

You can follow Jordan's journey on:

Instagram: @rareendojourney
Tiktok: @rareendojourney

The NHS in the UK categorizes Endometriosis as one of the top 20 most painful conditions. Jordan was misdiagnosed for two years and given many rounds of antibiotics which resulted in a life-threatening C. Difficile infection. June 24, 2020 she had a laparoscopy to see inside of her pelvic region with Shands Hospital. The surgeon found and removed seven lesions of a rare foci of Endometriosis (What Is Endo? At bottom), and discovered a lesion in her diaphragm as well (referred to as Extrapelvic Endometriosis). The surgeon photographed the lesion in her diaphragm but stated that a specialist would be needed to remove it. The intestinal tract and appendix were also not addressed during the first surgery. According to specialists, she will need her appendix removed and possible removal of Endometriosis on the intestines. 

Endometriosis is a misunderstood and very complex disease that affects each woman in vastly different ways depending on where it is growing and what type of Endometriosis they have. Jordan has a very painful type of Endometriosis infecting sensitive regions such as the bladder, appendix, and diaphragm which cause daily pain and fatigue not related to her cycle. Jordan has cramping that is so severe some days she cannot walk. She has bladder spasms during these episodes, and her the spasms cause blood in her urine. She also has pain going down both legs that points to lesions attaching to her nerves. The pain is so severe that it causes her to bawl up and cry, and she describes it as the worst pain imaginable. She has even stated in her worst moments that she doesn't know if she can make it through this pain. 

Jordan started college at the University of Florida with a full-ride Machen Florida Opportunity Scholarship, Jack Kent Cooke College Scholarship, and the Gold level Bright Futures Scholarship. She graduated top of her class with a 4.8 GPA and has always been an excelling student. Due to the pain Endometriosis causes, Jordan has not been able to attend classes and had to transfer from the University of Florida to Santa Fe College where the commute and walking is much less. With the transfer she lost her full-ride Machen Florida Opportunity Scholarship which was only available at the University of Florida. She also lost the opportunity to study at a University with more major options, limiting her ability to explore and find her true passion. Unless Jordan gets the help she needs, she will not physically and mentally be able to transfer to a college that offers more majors. Jordan also has goals to train part-time in a yoga studio, but her time on the yoga mat has significantly decreased as her pain has progressed.

Following medical advice, Jordan and I raised funds through family to visit an Endometriosis Deep-Excision Specialist for their expert opinion on treatment moving forward. The specialist stated that Jordan has Peritoneal (Stage 1/2) Endometriosis that is infecting very sensitive locations in her pelvic and thoracic region causing a lot of pain. The surgical team advised that she have a baseline deep-excision surgery as soon as possible to remove all lesions before they deeply infiltrate her organs and cause alarming complications. Without this surgery, Jordan will be high risk for lung collapse in the future. She will also have increasing pain as the lesions attach to nerves and deeply embed in her organs.

Research finds expert excision performed by a skilled specialist results in removal of disease, preserved fertility, and little to no endometriosis pain. Surgery also prevents further disease progression, possible organ dysfunction, and/or other serious complications. Prior to and following surgery Jordan would be placed on hormone therapy, physical therapy, vitamins and supplements, and an anti-inflammatory diet. 

Friends and family who know Jordan recognize that she leads a lifestyle devoted to holistic self-care practices. This has supported management of her Endometriosis pain and will continue supporting her moving forward. She has met the realities of this disease with her usual sense of drive and perseverance and has already expressed the desire to be an advocate for others living with Endo.

Excision surgery with a highly qualified specialist is not covered by Jordan's insurance which is why we need your help. We hope that with surgery and treatments thereafter she will be able to reclaim her life and successfully complete her education. Jordan has always been an intelligent and driven young lady. This surgery is much needed for Jordan to finish school and take advantage of the Jack Kent Cooke College Scholarship which can follow her through grad school. Without the surgery, I fear she will not be able to achieve her goals and get a good job with health insurance. This will be her second surgery, and after successfully removing all lesions the majority of Endometriosis patients need surgery every 7 to 10 years as maintenance. We hope that by the next surgery Jordan will have a job with insurance to cover medical expenses. Please help this little redhead get relief so she can move forward with her goals.

I am hosting this GoFundMe on Jordan's behalf with the financial oversight of her grandfather Harry Fehrman. Jordan came into my life in the seventh grade and has since been embraced as a member of my family. Asking for help has not come easily, especially at a time when so many are in need. We appreciate that you have taken the time to read her story.

If you choose to donate, no amount is too small. If you are unable to donate but still wish to support Jordan's journey, please share this link by email or on social media and tag 3 friends to do the same!

You can follow Jordan's journey on:

Instagram: @rareendojourney
Tiktok: @rareendojourney

Please keep Jordan and the family in your thoughts--We are all in this together after all. Thank you, Greg Fletcher. Or as Jordan has addressed me since she was a kid and a name I have come to love, "Mr. Greg."


What is Endo?
Endometriosis is when endometrial-like tissue is found outside of the uterus. Generally, endometriosis is found in the pelvic cavity although sometimes spreads to regions outside of the pelvic cavity. It can attach to any of the female reproductive organs including, but not limited to the outside of the uterus, fallopian tubes, ovaries, uterosacral ligaments, peritoneum, and any of the spaces between the bladder, uterus, and vagina. Endometriosis can also involve other areas including the large and small bowel, appendix, diaphragm, lungs, and rectum. The lesions are benign and estrogen-dependent meaning they do not need a uterus to grow and spread throughout the body. The lesions can attach to nerves and organs, and they can stick organs together causing intense pain.

More info on Endometriosis can be found at endofound.org

**Also, the amount for the surgery is subject to change depending on the thoracic surgeon's price and the cost of admission in the hospital. We are starting with a $70,000 goal but this could be increased depending on medical expenses needed. Thanks!

Donations

 See top
  • alexis watson 
    • $20 
    • 25 d
  • Daniela Benavides 
    • $5 
    • 1 mo
  • Milena Solis 
    • $20 
    • 1 mo
  • Anonymous 
    • $50 
    • 1 mo
  • Anonymous 
    • $100 
    • 1 mo
See all

Organizer

Greg Fletcher 
Organizer
Gainesville, FL
  • #1 fundraising platform

    More people start fundraisers on GoFundMe than on any other platform. Learn more

  • GoFundMe Guarantee

    In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more

  • Expert advice, 24/7

    Contact us with your questions and we’ll answer, day or night. Learn more