Hope for Tom

In late April 2017, my husband Tom was diagnosed with the gene mutation for SDHa. This gene is known to cause a myriad of diseases and disorders. For more information regarding this, visit: https://www.frontiersin.org/articles/10.3389/fonc.2019.00053/full.  He began numerous scans, labs and tests for hereditary paraganglioma-pheochromocytoma syndrome and various other diseases or disorders relating to this gene mutation.  "Hereditary paraganglioma-pheochromocytoma is an inherited condition characterized by the growth of noncancerous (benign) tumors in structures called paraganglia. Paraganglia are groups of cells that are found near nerve cell bunches called ganglia. A tumor involving the paraganglia is known as a paraganglioma. A type of paraganglioma known as a pheochromocytoma develops in the adrenal glands, which are located on top of each kidney and produce hormones in response to stress. Other types of paraganglioma are usually found in the head, neck, or trunk. People with hereditary paraganglioma-pheochromocytoma develop one or more paragangliomas, which may include pheochromocytomas. Although most paragangliomas and pheochromocytomas are noncancerous, some can become cancerous (malignant) and spread to other parts of the body (metastasize). Extra-adrenal paragangliomas become malignant more often than other types of paraganglioma or pheochromocytoma." https://ghr.nlm.nih.gov/condition/hereditary-paraganglioma-pheochromocytoma.

Tom is being treated at the Mayo Clinic by a team of phenomenal doctors for a Paraganglioma and Pheochromocytoma of the left adrenal gland and his scans have shown uptake in other areas of the body (back, neck, head) all of which are being researched at this time.

We appreciate all of those who have supported us on this long journey and believe that he is already healed in the name of Jesus!

God Bless ~ Kristy and Tom