Help for our Dominic

On Thursday February 15,2018 I prematurely delivered my son through emergency c section after he started to go into fetal distress at the grey nuns hospital. When my son was delivered he was blue and covered in hundreds of spots. He wasn’t breathing right and the decision was made to rush him to the Stollery hospital. The doctors here hadn’t seen his condition and he was a mystery, immediately they found out his spots were in his liver and because of the extra blood volume from the internal and external spots it was putting his heart in failure. But that wasn’t the worse to come, by Saturday February 17 the doctors decided he needed an MRI to determine the extent of his spots and found my worst nightmare, that he had had a stroke while in utero, caused by a cluster of veins called an Ateriovenus Malformation in his right temporal lobe. At that point they recommend palliative care and we prepared to say goodby to our son. That was the worst day of my life, I have never cried harder.
But Dominic is a fighter and has kept fighting. He has to have a CPAP machine to help his heart failure from getting worse while they figure out a treatment plan for his spots. He is taking several medications to keep him stable. They are currently investigating 2 possible drug options to reduce his spots but we are waiting on biopsy results which could still take some time. We know for sure in 3-4 months Dominic will have to have a brain surgery to deal with his brain malformation. But we have many hurdles before brain surgery can take place.
While we live in Edmonton and can save some money we are struggling with the daily and future costs of being at the hospital and having a child with special medical long term needs. We know there are extra items we will have to buy that we weren’t planning on buying to leave the hospital. His possible medications will make him immunodeficient and extremely photo sensitive. We appreciate any help we can get.