in 2015, Denyse was diagnosed with chronic fatigue syndrome after a year of catching persistent bouts of flu and tonsillitis. The Christmas of that year, a final bout of illness resulted in Denyse being bedbound with fatigue, unable to lift her head off the pillow or walk up stairs. Over the years, we have visited many, many practitioners to see if they can offer us help or give answers to Denyse’s sudden rapid decline in health. Many have given their insight and we have taken advice each time thinking that we have ‘the answer’ to her failing health. There have been better bouts of health over the last 4 years, but unfortunately this hasn’t lasted and the bad dips have heavily outweighed any good.
2018 was a very bad year for Denyse with most of her time being spent either in bed or on the sofa. There were better times, but again, these bouts were short lived and resulted in a ‘crash,’ as it is known which saw symptoms worsen for a period until the next ‘up.’
At the end of 2018, we found a practitioner who was finally able to give us answers to Denyse’s health problems. Debilitating fatigue doesn’t just happen- there has to be a root cause and a reason for it. Unfortunately the NHS don’t offer much support for CFS and patients who are simply given a diagnosis and not offered much in the way of help or support.. more research needs to be done for sure.
The root cause for fatigue is often complex and a combination of things that have a knock on effect on each other. Extensive private testing shows that Denyse has 2 chronic systemic infections (commonly found in people with Lyme disease). She also has 4 chronic systemic viruses. Her immune system is chronically suppressed which basically means that her immune system does not currently work. She can catch bugs and viruses that sit in her body, Adding to her hellish symptoms, but her body cannot fight them off.
Although the testing has given us some answers. Further tests reveal further issues that complicate the recovery. The latest being that Denyse at some point, has been exposed to toxic mold which has added to her burden and is further poisoning her body.
In February this year, because of Denyse’s declining health, we made a drastic decision to go to Germany for stem cell therapy to try and reboot her immune system. Funded by her parents, as everything has been on her health journey, this trip and treatment in total cost nearly £30,000 .
The results of the stem cells can take up to a year, however so far, Denyse’s ailments are only worse. Currently she has daily debilitating chronic fatigue, to the point of being bed or sofa bound on an almost daily basis.
she has low energy, pain throughout her body, tremors and gut issues. On better days, she has managed small trips out of the house, but these result in her ‘crashing.’
Denyse is missing out on life. We have a five year old daughter who Denyse cannot look after independently due to illness. She cannot take her to school. She isn’t able to take her to birthday parties or the park. She has missed countless special occasions due to her illness. During tough periods, Denyse has not had the strength to wash her own hair or feed herself. Whilst I am at work and our daughter is at school, Denyse has around the clock care from her mum who helps prepare her meals and make Denyse as comfortable as possible when she is feeling so sick.
We have an amazing practitioner that we are working with who is putting all the pieces of the puzzle together, but supplements, private testing, consultations and treatments do not come cheap. To date, Denyse’s family have spent uphill of £50,000 on all this and recently medical related costs have been averaging at £2000 a month (supplements, vitamin IVs, consultations, treatments). We have wanted to tackle this privately as a family and had hoped that Denyse would be better by now, but sadly 4 years later, there is more to be done and more money that needs to be spent. The truth is, we can’t keep up with the costs anymore at the rate they are at.
This has been a hard decision to post on go fund me but..
We are reaching out to anyone, that knows us, who knows Denyse and who has seen her struggle to regain her health- if you are able to contribute anything towards the costs of her treatment, we will be forever grateful to you.
Any money raised will go towards her current consultations, treatments, testing and supplements which are all a necessary part of her treatment plan.
She can and will get better, but unfortunately getting there isn’t free.
From the bottom of our hearts, if you can help us support Denyse, thank you so so much from herself, me our family and especially our daughter who just wants her mummy to be better. Which is all we all want.
Thank you, thank you..
Seth (Denyse’s husband)
- ROY SMALL
- Hayley Walczak
- Steven Flower
- Claire White
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