Help Daisy meet her destiny

Daisy is an amazing strong willed 13 year old girl. Who has a positive out look on life.However she is  fighting the worst disease you probably never heard of Epidermolysis Bullosa or E.B. for short . It is a genetic connective tissue disorder that affects every aspect of life. As Daisy her self describes in the video. Her skin blisters and sheers from the slightest touch and pressure.  What happens to her skin externally also is internal so she gets blisters and wounds even in her throat that affects her airway.Currently Daisy is have problems with increased pain , weakness and laxity or movement in some joints and other areas have contractures   which makes it difficult to walk , stand or do a lot of activities. We are asking
help to meet her  Medical  and Physical  needs by making adjustments and modifications to the home, a new wheel chair,  ramp, and items to help with her increasing physical therapy needs and her increasing mobility issues. Please help  her be able to Endure and Enjoy  all the adventures life has to offer as she continues to go forward to meet her Destiny.