Around Christmastime this year, our buddy-boy, Cove, was diagnosed with severe aplastic anemia, a rare condition in which the body stops producing enough new blood cells. Since 11/22/18 he has endured 2 bone marrow biopsies, 3 ER visits, an IVIG treatment, 18 blood product transfusions, and had surgery for a mediport placement. The Saxons have spent a total of 12 days hospitalized at the pediatric unit at Providence (including Thanksgiving and Christmas) with many of those days in seclusion.
Because Cove’s body is not producing platelets or red and white blood cells, his condition causes him to be extremely fatigued, have easy bruising, bleeding gums, frequent and prolonged infections, and shortness of breath with exertion. He has been such a warrior, a resilient little man as doctors searched for answers, but his energy is low and his body is having a hard time currently fighting off croup.
Cove has the most rare blood type: AB-. Out of his 18 transfusions, only 2 have had to be a different blood type, because members in the community with AB- blood have consistently been donating platelets and blood. Thank you SO much to whoever you are! You have helped keep Cove’s levels above critical over the past six weeks and we are moved by the support and life saving donations!
The only cure for aplastic anemia is a bone marrow transplant. On 1/2/19 his big sister, River, joined the fight and was identified as a bone marrow match! With only a 25% chance, it is a most welcomed miracle!
(The overall five year survival rate is 80% for patients who have a transplant. 3,000 people die a year not being able to find a bone marrow match. To get on the registry go to www.bethematch.org.
To donate blood products find the nearest blood bank.) Now we are asking you to help this amazingly strong and incredible family as they face the next steps in this battle. Cove and his family will need to spend a minimum of 3-4 months in Seattle for the transplant. Cove will first undergo a series of chemo treatments to prepare him for big sister’s life saving bone marrow. After the transplant, they will keep watch over him for at least 100 days there. While Josh and Brittany are beyond grateful and feel incredibly blessed to finally have some answers, a plan, and of course a match, the extreme nature of the situation and the long path to Cove’s health has and will inevitably put this young family in a difficult financial position.
Please consider contributing to this beautiful boy, the Saxon family, and their long battle against this nasty condition.
Thank you so much, anything helps and is SO greatly appreciated!