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Help Charlotte receive life saving treatment

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Hi everyone. I am charlottes mummy and I am raising £350,000 to get my 4 year old daughter Charlotte life saving treatment for Stage 4 high risk Nueroblastoma in America.

In December 2020 our world tipped upside down when we received the devastating news that Charlotte had cancer.

A couple of months beforehand she had been complaining of little toe pain, some leg and neck pain too and was becoming more tired which was really unusual for her. I thought the pain in her neck was from doing rolly polys on the sofa! She was always so ready for life! She was loving preschool and making great friends, loving ballet and keen to learn and be a big girl like her big sister who is three years older.
Her teachers at preschool had noticed she wasn't eating her lunch and just wasn't right. I took her to the GP and they checked her vitals and put it down to growing pains.

One day when I picked her up she said "mummy my back really hurts". I could tell she really was in pain. We went to A&E twice after that and after the second trip we didn't come home for weeks.

Scans eventually showed a mass near her adrenal gland that was presenting as a Nueroblastoma tumour. Biopsy's confirmed that they were right. 

It was indeed Nueroblastoma.

Treatment started right away which consisted of 80 days of intensive chemotherapy to shrink the tumour. This wasn't as successful as they hoped so Charlotte went on to have six more weeks of a different chemo which was a success in shrinking the tumour. Afterwards they did stem cell harvesting and cryotherapy before they operated and removed the tumour. The next stage of treatment was a gruelling high dose chemotherapy and stem cell replacement which made Charlotte so very sick. We endured an 8 week stay at the Royal Marsden where we were on edge and ready to go to intensive care to help her recover from the awful side effects. She pulled through
like a champion!

Radiotherapy and Immunotherapy are next to get her through to the end of the treatment which in all will be almost 1.5 years. That's her whole fourth year on earth she's been fighting Cancer.

The thing about high risk Nueroblastoma is that it has a high chance of coming back and currently with this particular treatment patients have about a 50% chance of surviving the 5 years after treatment.

There is however a treatment in New York that has not reached Europe that gives patients a higher chance of the Nueroblastoma not coming back and it's £350,000 so I am doing everything I can to get this for my baby girl. 

She deserves it!

The Bivalent vaccine takes the relapse rate from 50% to 20% and takes place at the Memorial Sloan Kettering Cancer Centre. 



Thank you from the bottom of my heart.
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Organizer

Angela West
Organizer
England

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