Sedaya Joi- Will you help bring joy?
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Sedaya Joi- Will you help bring joy?
Hospitalized for 14 years since birth Sedaya Joi Mayfield proved everyone wrong when she was discharged to her home she could only day dream about.
Born April 7, 2007 Sedaya was prematurely born at 29 weeks. Sedaya's parents were told she would not make it the night. Sedaya was born with Larsens syndrome which is a rare genetic disorder that affect the development of bones throughout the body, skeletal malformations, and distinctive facial and limb features, chronic respiratory failure, and hearing loss.
Sedaya endured 20+ surgeries, which includes spinal fusion and being tracheotomy dependent. Through it all- Sedaya defied the odds with her parents and siblings by her side! Her mom, was a pct in the very hospital Sedaya lived pushed and fought to advocate for Sedaya to come home convincing her medical team and staff that she and her family were committed to ensure Sedaya could have a life outside of Hospital of Special Care. And on May 6, 2021 it happened!
Sedaya has gained such independence. And now we need your help to maintain that. However the transition home has been more costly than expected we are aiming to raise $100,000. To be able to purchase a handicapped accessible van so Sedaya can travel in her power chair. Family gatherings, social events, doctor appointments, a park or even visit her extended family at Hospital for Special care whom she loves so much.
Will you make a donation today? Any amount will be a blessing. Read more on Sedaya’s journey captured by the New Britain Herald here:
#SpreadJoi
http://www.newbritainherald.com/NBH-New+Britain+News/390086/she-proved-them-wrong-after-14-years-in-hospital-new-britain-girl-goes-home-for-first-time-in-her-life-to-finally-live-with-her-family

Hospitalized for 14 years since birth Sedaya Joi Mayfield proved everyone wrong when she was discharged to her home she could only day dream about.
Born April 7, 2007 Sedaya was prematurely born at 29 weeks. Sedaya's parents were told she would not make it the night. Sedaya was born with Larsens syndrome which is a rare genetic disorder that affect the development of bones throughout the body, skeletal malformations, and distinctive facial and limb features, chronic respiratory failure, and hearing loss.
Sedaya endured 20+ surgeries, which includes spinal fusion and being tracheotomy dependent. Through it all- Sedaya defied the odds with her parents and siblings by her side! Her mom, was a pct in the very hospital Sedaya lived pushed and fought to advocate for Sedaya to come home convincing her medical team and staff that she and her family were committed to ensure Sedaya could have a life outside of Hospital of Special Care. And on May 6, 2021 it happened!
Sedaya has gained such independence. And now we need your help to maintain that. However the transition home has been more costly than expected we are aiming to raise $100,000. To be able to purchase a handicapped accessible van so Sedaya can travel in her power chair. Family gatherings, social events, doctor appointments, a park or even visit her extended family at Hospital for Special care whom she loves so much.
Will you make a donation today? Any amount will be a blessing. Read more on Sedaya’s journey captured by the New Britain Herald here:
#SpreadJoi
http://www.newbritainherald.com/NBH-New+Britain+News/390086/she-proved-them-wrong-after-14-years-in-hospital-new-britain-girl-goes-home-for-first-time-in-her-life-to-finally-live-with-her-family

Organizer
Shawnda Bennett
Organizer
New Britain, CT
