As a parent, it's always hard seeing your children fail, but it's heartbreaking seeing them denied the ability to try. My son has Cystic Fibrosis, a life threatening disease which causes serious lung and digestive problems. He has never allowed this disease to define him and has always fought hard despite always wanting more. This disease has taken so much from his life, with hours of daily physiotherapy treatments and nebulisers just to leave the house. He has had numerous bleeds in his lungs needing surgery, daily antibiotic treatments, sadly hospital is his second home. His lung function has never been good but he grabbed onto life, but it has now dropped further where every day is a struggle to breathe just doing the simplest of tasks. 

He now needs a double lung transplant,  a gift of life. He has been through so much, but continues to embrace life in the hope for a better one, but he is tired of the fight. He didn't bring this on himself and now he needs help to get through the next stage of his life. We have been made aware of the benefits, risks and potential complications of the transplant.  I want to see him breathe easy and be able to have a life that he can cherish. I want to give Ben the best chance of recovery after his transplant and some alterations will need to be done to the house so we can eliminate as much as possible any chance of rejection, there’s no plan B, we need that organ to work.

Once he has the transplant a new set of problems begin and he will need time to be able to get better and stronger without the stress of preventable infections and financial difficulty. Ben just wants a chance of a better life, a chance to breathe easy.

It will still be a hard road ahead with other factors, but just to see him being able to breathe with a full set of lungs and not be exhausted by coughing will be life changing for him. If you can help him in any way our entire family will be forever grateful.


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Sharon Crew 
Lytton QLD
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