Hello everyone, my name is Lynette, and my husband Tom and I are putting together this fundraiser for Baby Rue and her family. Currently, they are in the hospital in New York trying to get a handle on Rue's prognosis. Due to this, COVID restrictions, and the need to be with their very sick baby as much as they can, they have no income. Any funds raised through this fundraiser (or if you prefer to donate directly without going through GoFundMe you can Venmo Tatelyn-Cavadini) will go to their expenses. Please keep this family, their loved ones, and the medical team in your prayers and thoughts. Thank you so very much. I am the father of WillowRue Everlee Sieburg. Her mother and I are writing this story to tell you about our daughter. WillowRue who we call Rue is a beautiful baby who has been through a lot and a lot more to come. Rue was born on 12/11/2020, after a high-risk pregnancy, where Mom had hyperemesis, circumvallate placenta, and preterm labor symptoms starting in October. While Rue was being born her heart rate dipped low, but was born healthy at 39 weeks but was small for gestational age and weighed 5lbs 15oz. She had  high bilirubin levels for a while, needed to be under a heat lamp, and had low blood sugar for a bit while we were in the hospital. We went home after 2 days in the hospital. She was beautiful and everything we hoped for. Shortly after coming home, we had noticed some breathing struggles at bedtime, and she could not sleep on her back. After countless trips to the pediatrician, anti-acid medication, trying formula, a lip tie cutting, lots of projectile vomiting, intense pain and screaming for hours, and an inability to gain weight we went into the hospital on January 30th to figure out what was happening to our little girl. We spent 10 frustrating days in the hospital, where medical doctors refused exams, and did everything they could to tell us she had a simple prognosis of complex acid reflux and a milk protein allergy. With no plan other than wait for the milk to get out of her system and Elecare formula, we asked to go home and follow the treatment plan. We were home a week and things seemed to be looking up, she gained weight and for the first time since birth gained enough to be a pound above birth weight. Our hopes were high and were looking forward to her symptoms reducing because she was in so much pain every day. One thing remained constant through being at the hospital and it was that she had this fluttering back and forth movement of her eyes. We mentioned this at our hospital stay and we were told we were hypochondriacs and crazy. We went to the pediatricians this past Monday, and our wonderful pediatrician was concerned because she lost weight again. She was at a loss for what was going on and wanted to schedule an MRI, and I mentioned the eye movement again and she pushed for an urgent cranial ultrasound. We went to a local hospital right away and struggled with the wait because of how long I had been out of work, and we have struggled to earn money for the past month. After the ultrasound, we said can we just go as we urgently needed to get home. On our drive home, we received a call from our pediatrician, who told us we needed to turn around and immediately go to the ER because our Rue had a brain bleed and fluid on the brain. Once at the ER, we were told only one parent could be with Rue, and I lost it because I had no idea what was going to happen and I was allowed to stay at the hospital before. After waiting hours I was able to return to the hospital, and we found out that Rue had a large tumor under her brain near the optical nerves and that she would need a shunt to remove the fluid and decrease the pressure in her skull, and likely surgery to remove the tumor if possible. The plan last night was to put her under general anesthesia and get a longer MRI to get the best picture of the tumor to enable the neurosurgeon to have the best plan of action. This morning the oncologist came in to discuss the results of the MRI. She let us know that Rue’s tumor is cancerous, and has spread throughout her brain and her spine. Every ounce of strength we have has been taken from us, the risks are high, and we may possibly lose our daughter. As I write this, Rue is in an all-day surgery for the shunt and biopsy. We will wait for 2 days for pathology to identify the type of cancer, and a treatment plan will be created at that point. Rue is too young for radiation and not all cancers can be treated through chemotherapy. So Rue’s future is uncertain, we are heartbroken trying to stay hopeful for a miracle. I am the only one of us working and I have not been able to work with all of the medical issues going on with Rue. If you can find it in your heart to donate whatever you can so that our family can continue to fight this, for the unforeseeable future please do. Thank you.

Jaclyn Theis

Anonymous

Roberta Duesing

Paul Tafoya

Nelson Molly

Teresa Avalon

Shannon Stchur

Melissa Lahmann

Claudia Carvalho

Gretchen Hathaway

Amy Andrella

Marc Milewski

Emile S Miller

Katie Spires

Help Baby Rue and family!

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Platform is iOS

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