We have so much more hoops to go through!Thanksall
Our baby Hunter underwent yesterday, Saturday March 23rd, 2019.
Their baby Hunter was born premature at 26 weeks old, 1 lb 14 oz on February 22nd, 2019. Since his birth, he has been monitored tirelessly at UW Hospital and now Children's Hospital, where they have worked to help his body develop, before he can live without life support.
A few days ago, Hunter's body took a turn for the worse. His intestines began failing from a bad infection that went septic, and he has gangrene in his fingers.
Yesterday, Saturday March 23rd he underwent a complicated surgery to remove most of his intestines, and is currently in critical condition.
Please support Ashley, Tylar and their family as they face huge hospital bills and time away from work.. They have had a rough winter to say the least, as many of you know. Lets help lift the financial burden and help Hunter Heal..
Please share on Facebook and help spread the word.
Thank You
Latest update on Hunter
Hunter did absolutely amazing in surgery! He has been defying all odds! The surgeons are amazed! So glad that went well.... but we are not at all out of the woods. He is still open, his liver is too swollen for them to close him up, if the swelling of his liver goes down in the next two or three days they will go into surgery again and close him up, if not... they will put some synthetic material as a alternative till they are able to do it the ways it needs to be done.
The next 24 hrs are crucial and the days/weeks after that to come....
The talk with the surgeons was very overwhelming! To say the least! With the days ahead and what the future might or might not hold.
Hunters stay will be a really long time! They said some kids if they make it are in here up to two years! Some not that long but still quite sometime. Hunter is currently the sickest baby in the NICU but God is working mega miracles!
Also some other things is he lost blood ( getting more blood) and his potassium is low ( potassium helps the heart run properly) ( getting more potassium as well) and his kidneys are sick, he is also on vanco as he has a infection. His arm is pretty bad, his little fingers we are un sure they can be saved:(
intervention for his arm/hand is going to happen when he is stable, praying the meds help.
His blood pressure is finally stable, they have weaned him off the epinephrine, almost off the dopamine, the Vas not yet.
He is off the JET ( a breathing machine that literally takes breaths for him)
He is on the conventional breathing machine now.
His heart rate is good!
He has a colostomy bag and a tube in his belly to feed him ( TPN ).
This mama has LOTS to learn and some classes to take! I’m going to do everything in my power with God guiding me to help Hunter live his best life❤️ you guys he is SO amazingly strong and fighting and WANTS TO LIVE! If he didn’t he would not be showing us all the amazing things God is doing for him!
I pray for continued strength for Hunter. He has so many opticals to overcome.
I keep hearing the surgeons say IF he makes it home and I hate hearing that and I’m ok with them being honest with me but I get worried and just pray so hard he does come home with us, I told God that if He wants him in heaven with him I understand but please don’t take him from me, I want him here with us too bad! I feel in a fog and I just want the worry and fear to go away, it won’t..... Hunter will always be compromised and my mama anxiety will always be and I’m ok with that... I just pray so hard God wills that he lets him come home with us. I’m just so happy he did good through surgery the longest five hours of my life!
Thank you all so much, I know there’s so much information we got packed with, I just can’t remember it all right now.
Thanks again! You all are so beyond appreciated and loved.
❤️
Latest update
Update on Hunter.
We met with the NICU doc and the surgeon today.... The doc said as we knew he is still extremely swollen/puffy, he has been in a lot of pain today and it’s killing me watching him trying to cry a few times and can’t and I can’t snuggle him to help make it better.... they have been giving him morphine all day trying to keep him comfortable.
He is leaking fluids around his openings , not much is working to release the fluids ( they are watching him overnight as they have him on more meds to help even more to release fluids as it desperately needs to go)
Tomorrow the surgeon said they have to do surgery for the 4th time in a week... they are going to look how his 18 centimeters of small intestines look ( some weird sick looking green/brown fluid is leaking into his bulb) they are also checking to see how he looks to be sewn shut if more fluid comes out tonight, they are also seeing how they can decrease the swelling and a few other things.
Once again if anyone missed it or forgot he is off all BP meds! He is still on antibiotics for any infection.
His vitals are holding strong and it’s all him you guys ( he is so strong!) nothings helping him right now besides his conventional breathing machine as he really needs it as his left lung is collapsed and so grey:( they keep turning him to see if switching from one side to the other will help release the fluids and pressure. He can’t move so it’s not like he has that option to move his body to get things flowing:(
About his arm / hand it’s looks the teensiest better but unfortunately as of now the tips of his poor little finger tips are not at all looking savable and when they happens they do not remove them they just fall off they said ( uhg)
I’m praying for a MIRACLE in his arm/hand/fingers. I asked the doc how common this is and she said not at all common, it’s rarely seen and he has had every specialist take a look at it and they have tried a few things and nothing is really doing the trick. Breaks my heart!
He is/has been and will continue to receive blood.
They are going to get ready to hook him back up to the dopamine as he has surgery tomorrow, hopefully he will not need it, it’s just Incase.
Prayers please! And thank you all so so very much for everything!
Today is a very very hard day, I did not deal well with things very well today, I literally just am so spent, my heart hurts, I feel numb, I’m super tired, I don’t know how to stop worrying about everything right now, I’m staying my absolute strongest but yeah I’m broken down. Hoping tomorrow will be a little better.... I just want to wake up from this nightmare! We all do.
Prayers for Hunter, he is so strong! ❤️
any other updates are and will be posted on our Facebook and Instagram!
thank you all so so much!
