Arabelle’s cancer was found to have spread into her left renal vein connected to the left kidney as well as onto her right lung with other lung lesions in the veins that were determined to most likely be tumor mass blood clots. So on June 19, a week after the surgery to remove the football sized tumor (they named Massie), Arabelle had surgery to remove her left kidney. About a month later, on July 17, Arabelle had yet another surgery, this time to remove the tumor on her lung. Unfortunately the two other clots in the veins in her lungs cannot be accessed surgically.
As of this writing (mid-September 2018) Arabelle in on a serious chemo-type medication. Her older brother Yonah is schedule for his colectomy Sept. 20, leaving time for him to recover before Arabelle begins chemotherapy Oct. 4. The plan is for her to stay in the hospital for 5-6 days for chemo every 21 days or so over about a six month period.
The doctors have estimated Arabelle to have a 15-20% chance of survival. She will be on at least three different tough medications targeting her cancer, have at least one hospital stay a month for around six months, and have countless tests, scans, and procedures. On top of that, the family is looking to manage the FAP of Arabelle and her siblings.
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