Amanda Rose was diagnosed with Postural Orthostatic Tachycardia Syndrome. She Is a mother who worked as an aesthetician while going through nursing school to give her daughter a better life. In January She came down with a viral illness that caused her to have something called POTS. Amanda has spent the last 4 months recovering. In the beginning she could not get out of bed without ending up in the ER. She has spent countless trips to the ER and has seen many doctors in hopes of figuring out what was wrong with her. She has made progress and is able to move around again but needs to see an Autonomic specialist in hopes to make a full recovery.
POTS is a nervous system disorder specifically an Autonomic nervous system disorder. There are very few specialist in the country that can help her and most do not accept new patients or have stopped accepting people on their waitlist. Stanford Autonomic Clinic is the only clinic that is able to take Amanda but unfortunately they are out of network for her insurance.
Postural Orthostatic Tachycardia Syndrome or POTS affects Amanda’s daily life. When a normal person stands from a seated position their blood vessels constrict which pushes blood to the heart, brain, and other organs. This gets the blood distributed correctly throughout the body. For people with POTS their blood vessels do not work correctly. Instead when people with POTS stand their blood vessels dilate causing blood to pool in there legs which does not allow the blood to be push up and reach the heart and brain correctly. This causes the heart to try and compensate for the lack of blood that is not reaching vital organs and so the heart beats abnormally fast (Tachycardia.) This can cause nausea, vomiting, fainting, headaches, fast heart rate, and many other symptoms. Much is not known about POTS and it usually goes years being misdiagnosed. The specialist can help her figure out what form of POTS she has and if it’s secondary to another disease that she may have. They can also give her a treatment plan and hopefully with help her POTS will eventually go away
Amanda hopes this treatment will help her in her daily life. She wishes to go back to living a normal life with her daughter and hopes to be able to dance again, finish nursing school, and do the things she loves. Currently with Covid Amanda has been unable to work and can’t afford the costs alone.
The $15,000 covers the cost of treatment and the testing that need to be done. It does not include travel expenses.
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