Help Allen Fight Chiari's Painful Grip

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Help Allen Fight Chiari's Painful Grip

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Hello,

Thank you for taking the time to read this. My name is Allen Price, and I am here to ask for help in a time of need. About a year and a half ago I was diagnosed with a condition I was born with, Chiari Malformation. A week after diagnoses I was in surgery, and after that, everything changed. My health has never come back, and even a year and a half later Dizziness, disorientation and pain make daily life hard. I have tried everything to avoid the second surgery, but nothing worked and surgery is the only option left. June 4th, I have my second surgery, and I hope it will be my last.

I have just begun to rebuild the life I had before the first surgery, and now I may have to face that again. Any amount will help, and I will be very grateful for the gesture. Also, if anyone cares to hear the entire story, or to get more info, I am open to conversation and have been known to be an open book.

This is a poem I wrote about 2 weeks post surgery, it may paint the picture:

"All Chiari Consumed”

A monster inside
Years, 35 to be exact
It devised its plan and waited to attack

35 normal, mind understood
35 normal, emotion controlled
35 normal, fulfilled and blissful
35 normal years all but remissful

Starting small, devouring my identity
Challenging beliefs and changing thoughts
Stealing passions, changing the meaning of life
Consuming it all, truth now rife

Starting with task
Onto functions
Ending with movement
Contesting the junctions

All while inflicting crippling pain
Mind was lost, easily deceived by past
Present decisions, no longer mine
Life known dissolved, reformed in time

Frozen mind and now in space
Absent the knowledge to traverse this place
The more I look, the more unknown I see
My dreams make haste and flee

Future was set, certainty secured
With ‘her’ by my side, fears deterred
Limits ignored, the future was open
Fulfilled and complete, requiring no token

Present a monster, controlling my life
Scaring away those most dear
Driving divides and instilling fear

Now without ‘her’ I fight alone
My Direction is lost, my future unknown
Stolen possessions, all but time
That now lonely, unknown what’s mine

Thank you!

Organizer

al price
Organizer
Akron, OH
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