Hello everyone. My name is Alexandra. I am 29 years old and from New Jersey. I am creating this GoFundMe for myself and in hopes of supporting my little family, who has always supported me.
 <img src="https://d2g8igdw686xgo.cloudfront.net/79038205_171104485157696_r.jpg" alt="Image" width="100%" media_type="3" /> A little backstory on what I have been facing for the past thirteen years: When I was sixteen years old, my life changed forever. My father passed away after his long battle with scleroderma. The trauma must have triggered something in me, and that's when my health started declining. I suffer from severe skin complications. I have been to countless doctors and specialists, through insurance and lots out of pocket. I have tried lots of medications and lots of lifestyle changes with my diet. Many misdiagnoses. Nothing seems to help.
 The pain I feel is definitely higher than a 10. My condition has been on and off throughout the years. This current flare has been the longest one ever, lasting 6 months straight, and is the worst it has ever been. My rash typically appears on my face and on my hands. It is currently spreading to my arms and legs. If you have never experienced this, I hope you never have to. It's hard to understand, but I'll try my best to explain my struggles to you.
 <img src="https://d2g8igdw686xgo.cloudfront.net/79038205_171104485198122_r.jpg" alt="Image" width="100%" media_type="3" /> My skin goes through cycles. Sometimes it feels like my body is walking through a blazing fire, but no extinguisher can put it out. Sometimes it feels like I am getting stung by a million bees, but all I can do is stand there. Sometimes my wounds ooze for hours, and I have to carry on as I drip. Sometimes it feels like I am wrapped in saran while I have honey slathered all over my body and hair. I am uncomfortable daily, and I feel suffocated in my own body. I just want to breathe again. I want the pain to go away.
It may seem like I have it all together, but behind closed doors, I face challenges daily. I dread taking a shower because the water feels like acid on my skin. There have been times when my husband has had to blend my food or chop it up really small for me because my mouth cannot open wide enough. Combing my hair is a nightmare because my hands will start to crack and bleed. You get the idea.
 Aside from the intense physical pain, this has also impacted me mentally and emotionally. I hate to say it, but yes, there are some days I would much rather not be here. I cannot imagine living the rest of my life like this. This has been a long fight, and unfortunately, I am at the point where I need to ask for help.
 <img src="https://d2g8igdw686xgo.cloudfront.net/79038205_1711044850705903_r.jpg" alt="Image" width="100%" media_type="3" /> While I am very grateful to have learned how to "live a healthier life," this has financially robbed us. From buying medications, supplements, non-toxic products, eating a healthy diet, medical bandagings, visiting specialists. It all adds up, and we are barely making ends meet.
 I have been avoiding this for a while because nobody wants to feel like a beggar. We all want to feel like we have it together and can do it on our own. I know there are other people who certainly have worse circumstances, and that breaks my heart. I wish I could take everyone's pain away. I am a wife and a mother to the sweetest 9-month-old baby boy. We all try our best, but the mom guilt is real. It's depressing that I do not feel good enough for them. I so desperately want to find the root cause of this terrible disease and be the best version of myself for them. They are my reason to keep going.
 <img src="https://d2g8igdw686xgo.cloudfront.net/79038205_1711044850676008_r.jpg" alt="Image" width="100%" media_type="3" /> My husband has been my only support. He has been juggling it all on his own shoulders, and I can tell the weight is getting heavy. He has been working jobs here and there to get us by. He has been working on our house to try and get it into better condition for our health. He does the majority of the cooking and cleaning. He does all the errands. He does so with a humble heart, and I am so grateful that he really meant "through sickness and health."
 If you have made it this far, I want to thank you so much for taking the time to care and understand.
 Now for the financial aspect of this: The money graciously donated will be used for an array of purposes. I have done extensive research over my countless years and many nights awake crying in pain. I don't want to jinx myself by sounding too optimistic in my goals for healing, but I want to know that I have at least tried everything possible. As much as I wish I could immediately put the money towards my health, first and foremost, the most important thing the money would go to would be to make sure our mortgage will be taken care of for at least the next few months. Having that security will be a big sigh of relief.
Next, the money would be used to help cover expenses such as utilities and food. Finally, if I am blessed enough to raise a decent amount, then I will be able to dive into focusing on tools to hopefully heal. I have seen many people share their testimony online of them curing their mysterious skin rashes. I know it's possible. I have faith. I need to believe in this. A few things I would target if I had the means: • Our basement has exposed dirt and a high water table that causes the dirt to become saturated, thus causing mold. I would want our basement to be properly sealed and for our home to be thoroughly remediated for hidden mold in our HVAC and possibly behind some walls. My husband, Gavin, has been working so hard chipping away at the projects on his own. This will be the most costly one. • Next, our water is really hard, and my skin could benefit from a whole-house water softener. We also recently found out that our water is a bit contaminated. Being able to purchase a filtration system for drinking and cooking would be really helpful. <img src="https://d2g8igdw686xgo.cloudfront.net/79038205_1711044850673250_r.jpg" alt="Image" width="100%" media_type="3" /> Once our home is secured as a safe zone, I would like to address other possible contributing triggers such as: • Decaying root canals removed and replaced with implants from a biological dentist. • My deviated septum. I have had the septoplasty surgery on it before, but it failed. I would like to try again because I know the importance of proper breathing.
 I'd like to mention that we are quite frugal and make the most of the resources available to us. I realize that not everyone may grasp the significance of my GoFundMe, and that's perfectly fine. If you've made it this far, I sincerely appreciate your presence and support.
 <img src="https://d2g8igdw686xgo.cloudfront.net/79038205_1711044850973929_r.jpg" alt="Image" width="100%" media_type="3" /> With all that said, if you have the means to donate, that would be greatly appreciated beyond what words can express. Whether it's $5 or $500, your contribution will help. If you do not have the financial ability to help, I completely understand and am asking from my heart if you could be so kind to at least share my GoFundMe link with your friends and your family. The more people this reaches, the more chances I have at hopefully finding relief from this terrible pain I am constantly in.
 Please help me have a chance at a better quality of life. Please help me take the burden off my husband's shoulders. Please help me be able to be healthy for my baby boy. Please. <img src="https://d2g8igdw686xgo.cloudfront.net/79038205_1711044851113174_r.jpg" alt="Image" width="100%" media_type="3" /> Condensing 13 years into one post is challenging, but if you have any questions about my condition and how your donation could assist, please feel free to reach out. I am transparent and willing to provide more detail. Although I'm aiming high with my goal, I harbor no expectations of achieving it entirely. However, reaching it would enable us to fulfill everything I am praying for. Furthermore, if you find yourself facing challenges of your own while reading this, please accept my heartfelt embrace. As the saying goes, it takes a village. I hope that someday I'll be able to pay it forward and offer support to others in need. <img src="https://d2g8igdw686xgo.cloudfront.net/79038205_1711044850842375_r.jpg" alt="Image" width="100%" media_type="3" /> "Even though I walk through the darkest valley, I will fear no evil, for you are with me; your rod and your staff, they comfort me." Once again, thank you, thank you, thank you!
 <img src="https://d2g8igdw686xgo.cloudfront.net/79038205_1711044850746447_r.jpg" alt="Image" width="100%" media_type="3" /> Love, Alexandra
 <iframe media_type="0" media_id="KQ8_OH5-OWw" class="youtube-replace" title="YouTube video player" style="margin-bottom:20px;width:560px;height:315px;" src="//www.youtube.com/embed/KQ8_OH5-OWw/?rel=0" frameborder="0" allowfullscreen="1"></iframe>

Maya K. Buono

Anonymous

Kimberly Bobrofsky

Ruhaan Mutsuddi

Kathrin Herr

Michael Beyer

Sharon Sutliff

Galyna Murtasov

Jacqueline Greto

Amara Riccio

Serena Garcia

Jarrett Wilson

daryl dunagan

Maria Iovino

Help Alexandra Find A Cure

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Help Alexandra Find A Cure

Still $84,783 to go. Help us build momentum.