Help Addi fight PANS & Lyme
Donation protected
My sweet 9 year old, Addi is battling severe neurological symptoms associated with PANDAS/PANS. There is also a big possibility of Lyme. She tested positive on Lyme specific band on a Western Blot test. She needs a more stringent test that will give better and more accurate results.
She struggles with ADHD, OCD with intrusive thoughts, rituals and habits, Oppositional Defiance Disorder with rages and emotional instability. Seperation anxiety and irrational worries are also common. She struggles with severe verbal tics and small motor tics. These symptoms have absolutely turned our lives upside down and have burdened my heart more than I can express. They came out of nowhere and with no warning. My sweet Addi is struggling to make sense of something none of us know how to.
We have found a reputable Lyme literate doctor who is also a PANDAS/PANS Specialist, to treat her possible Lyme and hopefully help to resolve the neurological symptoms that are burdensome to her and heart-rending for us. This doctor does not accept insurance, like most Specialists of this nature. One visit alone is $600.00 upfront and that does not include medication and supplements which total around $300.00. Extensive lab work is needed and that is going to be upwards of $500 that will need repeating. Follow-up visits which are $500.00, phone visits, and travel will push the dollar amount into the thousands and there is no projected timeframe for this vital treatment plan.
Please understand that I haven't wanted to seek help this way, but I believe there are so many people who love our Addi and might be open to helping her financially. We originally tried to work with a more traditional PANDAS doctor who utilized insurance, but she got worse and the level of thoroughness and care was not nearly what she needed. For this reason we are seeking a more thorough and extensive treatment.
My only aim is to heal my daughter and relieve her of these burdens that no child should have to shoulder. She prays every night for the Lord to heal her and I believe we are being sent to this doctor for that purpose. Thank you.
She struggles with ADHD, OCD with intrusive thoughts, rituals and habits, Oppositional Defiance Disorder with rages and emotional instability. Seperation anxiety and irrational worries are also common. She struggles with severe verbal tics and small motor tics. These symptoms have absolutely turned our lives upside down and have burdened my heart more than I can express. They came out of nowhere and with no warning. My sweet Addi is struggling to make sense of something none of us know how to.
We have found a reputable Lyme literate doctor who is also a PANDAS/PANS Specialist, to treat her possible Lyme and hopefully help to resolve the neurological symptoms that are burdensome to her and heart-rending for us. This doctor does not accept insurance, like most Specialists of this nature. One visit alone is $600.00 upfront and that does not include medication and supplements which total around $300.00. Extensive lab work is needed and that is going to be upwards of $500 that will need repeating. Follow-up visits which are $500.00, phone visits, and travel will push the dollar amount into the thousands and there is no projected timeframe for this vital treatment plan.
Please understand that I haven't wanted to seek help this way, but I believe there are so many people who love our Addi and might be open to helping her financially. We originally tried to work with a more traditional PANDAS doctor who utilized insurance, but she got worse and the level of thoroughness and care was not nearly what she needed. For this reason we are seeking a more thorough and extensive treatment.
My only aim is to heal my daughter and relieve her of these burdens that no child should have to shoulder. She prays every night for the Lord to heal her and I believe we are being sent to this doctor for that purpose. Thank you.
Organizer
Jennifer Tutor Wall
Organizer
Ashland, KY
