<div>Hi, my name is Daniel &amp; im attempting to raise funds for my 18 year old daughter who suffers from a rare genetic heart condition lesser known as C.P.V.T.
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<div>The condition itself is not widely known, but to my families knowledge, only up to 3 known cases are in the UK and unfortunately my daughter is one of them.
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<div>It is best described as life threatening with the chances of survival slimmer in younger people, just for clarification we have been on this train for nearly 10 years and only found out how servere it is 3 years ago.
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<div>It's so rare, that when she has an "episode" it carries seizure like symptoms, pale skin, loss if breath and loss of body control &amp; function, you would almost appear to have something minor as low blood sugar but infact it could mean something far worse if not looked into. We had sought help over the years from various health care professionals in the UK &amp; not a single one being able to pin-point the cause of the "episodes" she was having. More severely being reported to social services by a doctor at the great western hospital in Swindon for child endangering, following a bad fall while at her school and causing a head injury. Following this, an amazing person from Bristol Royal offered to help &amp; pass on the information to her staff and low and behold, within a week she was admitted to Bristol and the journey to recovery started.
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<div>The staff at Bristol have been absolutely amazing on this journey, but unfortunately as my daughter is now 18 she has been transferred to Oxford for ongoing care. As early as last friday (12/09/2025) we have now been told that she will not be able to enjoy things as a young adult that the rest of us take for granted. She won't be able to drive, potentially unable to fly, enjoy days out with friends and family, as she is vastly restricted &amp; she could collapse again but this time she may never wake up.
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<div>The main purpose of this fundraiser is simple, we as a family want to be able to cross off her bucket list as best we can, while she is still with us enjoying what we all currently have as best as we all can. We would also like to donate remaining funds to Bristol Royal hospital, to help towards things that my wife and I struggled with in our time there, for example, parking fees, accommodation for families if they are unable to travel home every day, food, entertainment while staying in hospital, regardless of the length of stay.
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<div>Lastly, it would mean the world to us all if we could travel the world and meet others, young and old who also have this condition (C.P.V.T) and make lasting friends and spread awareness of the severity and challenges this condition brings.
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<div>Thank you for your time and generosity and may you be apart of our friends and certainly family going forward.
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<div>Thank you  
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Olivia Barrett

Anonymous

Terry  (FC)

Michelle Schlupp-Taylor

Marta Romanowska

Rachel mccrea

Sundarraman Venkataraman

Wayne Shayler

Corinna Moore

Heart found friends

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

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NextDoor Share Option Users

Fundraisers with Reactions feature capability

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US + Non-charity COs Only

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fund country is US and user language is English

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Poster share - new funds eligible (newest 9/18)

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GoFundMe Employees

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Mark Rieth IP Address

Version 9.2.0 and above

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desktop

Android v12.11.0 and above

Platform is Android

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checkoutType

Payment method type group to be vaulted on success

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Share Text generation Skip Fundraiser

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UKCharities

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US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

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braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

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Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

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Android at or above 12.2.0

Profile photo entry point audience

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Activity Tracking v1 Beta Testing

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Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

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AI Chatbot Audience

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UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

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Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

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Influencer - Prod

US fundraisers and US users

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Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

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Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

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Localized Currency

v11.5.0 and above

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Survicate

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Non-charity fund

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CAD Donation Upsell Audience

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NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Heart found friends

Still £9,798 to go. Help us build momentum.