As a family we have seen much tragedy and have lost many loved one's to Huntington's Disease. HD is a hereditary disease that effects the brain robbing you of all we take for granted, making it a vicious cycle of fear of inheriting it, mixed in with the sadness of watching loved ones slowly but surely lose their battles.
With many waking up with this illness as their reality and some still at risk, it is so important to keep the hope of finding a cure in our lifetimes.
Since I was diagnosed with HD just 18 months ago, we have lost 3 loving brothers.
One being my father.
My partner, Matt, has been by my side through all of the heartache and we are now at a stage in our relationship of wanting to have a baby.
We were at a loss when we researched into how to ensure our baby was HD free. It is a very costly process and PGD (the gene selection part) is not covered by Medicare.
It pains me so much to hear this as in comparison it costs so much more to house, feed, clothe and look after high care patients in the latest stages of the disease, when we could eradicate it by making PGD more affordable to people with numerous genetic conditions.
It was at this point, family approached us with the idea of a fundraiser.
We are so overwhelmed by the love and support and for that alone we are forever grateful.
Matt and I have a love that conquers all and I cannot wait to one day experience parenthood with him, as always at my side
WE DO APPRECIATE YOUR LOVE and SUPPORT
Britt and Matt xxxx