MOYAMOYA, You may ask yourself, what is MoyaMoya?... That's the same question Thomas and Racheal Evans asked themselves when their 4 year old Willow was diagnosed with it!
Willow was a typical 4 year old, full of love and energy who just started pre-school, until one day she complained of a headache and yelling out that she couldn't walk. Noticing a difference in her actions, they took her at her word and rushed her to Dayton Children's! This would start their first stay in the hospital on their very long journey! Willow indeed had a stroke!! 4 years olds don't have strokes! Tests were run and blood was drawn and the results were shocking!
MOYAMOYA is in-fact a rare disease, extremely rare! It is most likely to manifest itself in people over 35 and of an Asian decent. It is caused by blood vessels not properly carrying blood to the brain which is in-fact what caused the stroke! After being referred to Columbus Nationwide Children's hospital, they would learn just how rare and serious this disease is! Brain surgery on both sides of the brain would be needed to try and correct the blood vessels in Willow's brain! The Doctors had never performed this surgery on anyone under the age of 35 and the rarity of this was less than 0.04 % .
Putting their faith in God and the Doctors, the surgery was finally scheduled for October 23rd! I am reaching out for help for Tommy and Racheal and asking for prayers and any donations you can afford! Medical insurance is only covering roughly 80% of the medical bills and Tommy is unable to work at the current time! After this Friday, there are no more funds coming in! FMLA will cover his job while Willow continues her fight, but will not pay the bills! They also have 3 other children depending on them during this very trying time.
You can follow Willow's story and recovery on Facebook under her Willowstrong page!
DonationsSee top donations
- Norm & Lou Ann Horstman
- Grace Craycraft
- Chris Miller
- Elizabeth Bailes
Organizer and beneficiary
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more