Haley Neuwirth - POTS Medical Fund

This year, October means something different to me. October is dysautonomia awareness month; many of you have probably never heard of it before, so I’ve decided it’s time to share my story and raise awareness. Dysautonomia is not as rare as you may think, I am one of 70 million people waiting for a cure. Long story short, dysautonomia is an umbrella term for many different medical conditions involving a dysfunction of the autonomic nervous system, which regulates involuntary functions such as blood pressure, heart rate, digestion, temperature control, etc. 

3 months ago I was diagnosed with 2 forms of dysautonomia: Postural Orthostatic Tachycardia Syndrome and Neurocardiogenic Syncope.  After months of doctors appointments, blood tests, iv’s, EKG’s, lung tests, every other test in the book, and puzzling 7 different doctors, we finally got a diagnosis.

Honestly, I felt relieved at first, diagnosis means treatment, I thought it would be a piece of cake, get some meds to get this under control and continue on with my life. Unfortunately, it hasn’t been that easy. It’s been an uphill battle, to say the least.  The first few combinations of meds have not worked very well for me, I am essentially useless while taking them, yet i can’t function without them. That being said, everything next on the list is very expensive and insurance is not always willing to cover. 

I need your help, I have created a go fund me page to raise money for many expenses in the foreseeable future. I am going to be traveling to a POTS treatment center to see specialists and attend a two week treatment program; this program is $7,000 not including any other expenses. The money raised will go towards the program, medications, appointments, hospital bills, airfare, hotel, and any other medical expenses we encounter. 

I can not begin to explain how much your support means to me, and I can never thank you enough. I am eternally grateful for all of you ❤️

Keep it positive and never ever give up